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在英国国家卫生研究院全球呼吸健康研究项目(NIHR Global RESPIRE)下,促进低收入和中等收入国家呼吸健康研究开放数据共享的开放科学政策指南。

Open science policy guidelines promoting open data sharing in low and middle-income countries for respiratory health research under NIHR Global RESPIRE project.

作者信息

Mohanty Tapas Kumar, Smith Simon, Bhattacharjee Tathagata, Weir Christopher J, Norrie John

机构信息

KEM Hospital Research Centre, Vadu Rural Health Program, Pune, India.

The University of Edinburgh, NIHR Global Health Research Unit on Respiratory Health (RESPIRE), Edinburgh, UK.

出版信息

J Glob Health. 2025 Jul 1;15:03021. doi: 10.7189/jogh.15.03021.

Abstract

Open science drives progress, especially in the low-and-middle-income countries (LMICs), where data security and confidentiality are at risk due to lack of resources and non-compliance with diverse privacy laws. The National Institutes of Health and Care Research (NIHR) Global Health Research Unit on Respiratory Health (RESPIRE 2) project, funded by the UK NIHR, is a global collaboration led by the University of Edinburgh and Universiti Malaya, in partnership with seven LMICs and the UK. The collaboration developed open science policy guidelines to streamline data sharing, while ensuring compliance with privacy laws. They thus enable open data sharing in RESPIRE, furthering knowledge and scientific progress and providing greater research opportunities. This is in alignment with UNESCO, which promotes the open science movement to make scientific research and data more accessible, transparent, and collaborative. Some of the key components of this policy guideline are: Here we outline some of the key components of this policy guideline and provide recommendations. By following ethical data-sharing practices and fostering international collaboration, researchers, research assistants, technicians, and research support services can improve the impact of their research and contribute significantly to resolving global health challenges. Policymakers, research institutions, and funding agencies must support the adoption of open science practices in local contexts for long-term sustainability.

摘要

开放科学推动进步,尤其是在中低收入国家(LMICs),由于资源匮乏以及未能遵守各种隐私法律,数据安全和保密性面临风险。由英国国家卫生与保健研究机构(NIHR)资助的全球卫生研究呼吸健康研究组(RESPIRE 2)项目,是一项由爱丁堡大学和马来亚大学牵头、与七个中低收入国家及英国合作开展的全球合作项目。该合作制定了开放科学政策指南,以简化数据共享,同时确保遵守隐私法律。这些指南从而使得RESPIRE项目能够进行开放数据共享,促进知识和科学进步,并提供更多的研究机会。这与联合国教科文组织相一致,该组织推动开放科学运动,以使科研和数据更易于获取、更透明且更具协作性。本政策指南的一些关键组成部分包括:在此,我们概述本政策指南的一些关键组成部分并提供建议。通过遵循符合道德规范的数据共享做法并促进国际合作,研究人员、研究助理、技术人员和研究支持服务机构能够提高其研究的影响力,并为解决全球卫生挑战做出重大贡献。政策制定者、研究机构和资助机构必须支持在当地采用开放科学做法,以实现长期可持续性。

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