Crooks Sophie, Mitchell Gary, Wynne Lisa, Carter Gillian
School of Nursing and Midwifery, Queen's University Belfast, Belfast, Northern Ireland, UK.
Parkinson's Ireland, Dublin, Ireland.
BMC Geriatr. 2025 Jul 2;25(1):441. doi: 10.1186/s12877-025-06091-5.
There appears to be a lack of empirical investigation on how the public currently understands Parkinson's Disease (PD)and the impact this has on people with PD and their carers, across Ireland. This research hopes to build a greater public understanding of PD, reduce stigma and improve the quality of life for people with PD. The aim of this study is to (1) explore public perceptions, awareness and understanding about PD across the island of Ireland and (2) discover how this impacts people with PD and their families.
This study will adopt a mixed-methods, sequential explanatory methodology across four phases. This will include a systematic review of the literature, semi-structured interviews with people with PD and their carers, and focus groups with specialist PD professionals to determine how public perception impacts those living with PD. Following this, an online Delphi survey will be conducted with PD experts to determine a list of key priority areas for PD education.
PD affects a large population of people worldwide and this number is expected to increase due to a progressively ageing population. There is a lack of empirical research exploring what the public know about PD and the impact this has on people living with the disease particularly in Ireland, therefore it is vital that we determine a list of priority areas for increasing PD awareness to improve the quality of life of those living with PD.
在爱尔兰，目前似乎缺乏关于公众如何理解帕金森病（PD）以及这对帕金森病患者及其照料者产生何种影响的实证研究。本研究希望增进公众对帕金森病的了解，减少污名化，并改善帕金森病患者的生活质量。本研究的目的是：（1）探讨爱尔兰全岛公众对帕金森病的看法、认识和理解；（2）了解这对帕金森病患者及其家庭产生怎样的影响。
本研究将采用混合方法，分四个阶段采用顺序解释性方法。这将包括对文献的系统回顾、对帕金森病患者及其照料者的半结构化访谈，以及与帕金森病专业专家进行焦点小组讨论，以确定公众认知如何影响帕金森病患者的生活。在此之后，将对帕金森病专家进行在线德尔菲调查，以确定帕金森病教育的关键优先领域清单。
帕金森病影响着全球大量人口，并且由于人口老龄化加剧，这一数字预计还会增加。缺乏实证研究来探索公众对帕金森病的了解以及这对该病患者的影响，特别是在爱尔兰，因此确定提高帕金森病认知度的优先领域清单对于改善帕金森病患者的生活质量至关重要。
