Jagota Priya, Jongsuntisuk Porntip, Plengsri Rachaneewan, Chokpatcharavate Marisa, Phokaewvarangkul Onanong, Chirapravati Vittratorn, Panyakaew Pattamon, Sringean Jirada, Bhidayasiri Roongroj
Chulalongkorn Centre of Excellence for Parkinson's Disease and Related Disorders, Department of Medicine, Faculty of Medicine, Chulalongkorn University and King Chulalongkorn Memorial Hospital, Thai Red Cross Society, Bangkok, Thailand.
Chulalongkorn Parkinson's Disease Support Group, Chulalongkorn Centre of Excellence for Parkinson's Disease and Related Disorders, Department of Medicine, Faculty of Medicine, Chulalongkorn University and King Chulalongkorn Memorial Hospital, Thai Red Cross Society, Bangkok, Thailand.
Patient Relat Outcome Meas. 2020 Aug 12;11:143-148. doi: 10.2147/PROM.S243990. eCollection 2020.
People with Parkinson's (PwP) often feel stigmatized, especially when their symptoms are visually prominent. In some countries, public awareness of Parkinson's disease can be minimal, leading to social challenges for PwP.
A public educational campaign using videos (VDO) showing 5 PwP in different social situations that their symptoms could be a source of inconvenience to others were launched on Facebook (FB) and television (TV). We describe the process and report the impact of the campaign on patients and the public. Number of shares and likes and the first 100 comments on FB were analyzed.
There were almost 1 million views, 680,000 likes, and 256,000 shares in the Center's and popular Facebook Pages within 24 hours, subsequently reaching 4.4 million views, 138,000 likes, and 78,000 shares. Patients reported changed behavior and demeanor by the public towards them. The public's comments ranged from stating that they have seen PwP without knowing what it was to requests for more information about PD to thanks for the informative VDO. People also shared their experiences with PwP.
The campaign was impactful in creating awareness about PD. Creating appealing content with appropriate video length and collaborating with community groups that have relevant skills can help in creating and disseminating an educational video which creates a significant impact on society as a whole. This can be emulated to educate the public about other diseases.
帕金森病患者（PwP）常常感到受到污名化，尤其是当他们的症状在视觉上很明显时。在一些国家，公众对帕金森病的认识可能非常有限，这给帕金森病患者带来了社会挑战。
在脸书（FB）和电视（TV）上发起了一场公共教育活动，使用视频（VDO）展示了5名帕金森病患者在不同社交场合的情况，表明他们的症状可能会给他人带来不便。我们描述了该活动的过程，并报告了其对患者和公众的影响。分析了脸书上的分享数、点赞数以及前100条评论。
在24小时内，该中心和热门脸书页面的浏览量近100万次，点赞数68万次，分享数25.6万次，随后浏览量达到440万次，点赞数13.8万次，分享数7.8万次。患者报告称公众对他们的行为和态度有所改变。公众的评论包括表示他们见过帕金森病患者但不知道是什么病，到请求提供更多关于帕金森病的信息，再到感谢提供信息丰富的视频。人们还分享了他们与帕金森病患者的经历。
该活动在提高对帕金森病的认识方面很有成效。制作具有适当视频长度的吸引人的内容，并与具备相关技能的社区团体合作，有助于制作和传播对整个社会产生重大影响的教育视频。这可以被效仿用于向公众普及其他疾病。
