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自闭症谱系障碍儿童家长的心理韧性与附属污名:生活满意度的中介作用及排斥的调节作用

Resilience and Affiliate Stigma Among Parents of Children with Autism Spectrum Disorder: The Mediating Role of Life Satisfaction and the Moderating Role of Ostracism.

作者信息

Chen Hanyu, Ding Ying, Xu Dongchen, Xiong Zhiheng

机构信息

School of Rehabilitation Sciences, Jiangsu Provincial Key Constructive Laboratory of Special Children's Impairment and Intervention, Nanjing Normal University of Special Education, Nanjing, People's Republic of China.

Bio-X Institutes, Shanghai Jiao Tong University, Shanghai, People's Republic of China.

出版信息

Psychol Res Behav Manag. 2025 Jun 28;18:1519-1529. doi: 10.2147/PRBM.S524580. eCollection 2025.

Abstract

PURPOSE

Parents of children with autism spectrum disorder (ASD) often encounter multifaceted challenges when addressing their children's special needs. While existing studies have examined the relationship between parental resilience and mental health in this population, the underlying mechanisms governing this association remain poorly understood. The present study aims to investigate the association between parental resilience and affiliate stigma, examine the mediating role of life satisfaction in this relationship, and assess the moderating effect of ostracism on these pathways.

METHODS

This study employed a cross-sectional design to examine the relationship between resilience and affiliate stigma among parents of children with ASD, as well as the underlying mechanism. A total of 380 caregivers were recruited from autism intervention centers in Jiangsu Province, mainland China. Participants voluntarily completed questionnaires including the Brief Resilience Scale, the Affiliate Stigma Scale, the Satisfaction With Life Scale, and the Ostracism Short Scale.

RESULTS

(1) Resilience of parents of children with autism negatively predicted affiliate stigma; (2) Life satisfaction partially mediated the relationship between resilience and affiliate stigma; and (3) Ostracism significantly moderated the relationship between life satisfaction and affiliate stigma.

CONCLUSION

This study reveals the complex relationship between resilience, affiliate stigma, life satisfaction, and ostracism among parents of children with ASD. It highlights the significance of enhancing parental resilience, improving life satisfaction, and reducing ostracism in alleviating the stress of affiliate stigma in families of children with autism. In the family support system for children with ASD, it is necessary to build an inclusive social environment and provide resources for psychological interventions to enhance parents' resilience in the face of challenges.

摘要

目的

自闭症谱系障碍(ASD)儿童的家长在满足孩子特殊需求时常常面临多方面挑战。尽管现有研究已考察了该群体中父母心理韧性与心理健康之间的关系,但这种关联的潜在机制仍知之甚少。本研究旨在探究父母心理韧性与附属污名之间的关联,检验生活满意度在这种关系中的中介作用,并评估被排斥对这些路径的调节作用。

方法

本研究采用横断面设计,考察ASD儿童家长心理韧性与附属污名之间的关系及其潜在机制。共从中国大陆江苏省的自闭症干预中心招募了380名照料者。参与者自愿完成问卷,包括简易心理韧性量表、附属污名量表、生活满意度量表和被排斥简表。

结果

(1)ASD儿童家长的心理韧性对附属污名有负向预测作用;(2)生活满意度部分中介了心理韧性与附属污名之间的关系;(3)被排斥显著调节了生活满意度与附属污名之间的关系。

结论

本研究揭示了ASD儿童家长心理韧性、附属污名、生活满意度和被排斥之间的复杂关系。强调了增强父母心理韧性、提高生活满意度以及减少被排斥在减轻自闭症儿童家庭附属污名压力方面的重要性。在ASD儿童的家庭支持系统中,有必要构建包容的社会环境并提供心理干预资源,以增强家长面对挑战时的心理韧性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ef6a/12219156/d1d088f00c57/PRBM-18-1519-g0001.jpg

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