Dean Raya, Juliebø-Jones Patrick, Pietropaolo Amelia, Bhojani Naeem, Kamal Wissam, Somani Bhaskar
Department of Urology, University Hospital Southampton, Southamptom, The UK.
Department of Urology, Haukeland University Hospital, Bergen, Norway.
Urol Res Pract. 2025 Jun 24;51(3):84-88. doi: 10.5152/tud.2025.25033.
Objective: Urinary tract infections are burdensome for patients. Social media is increasingly used as a platform for patients and public to seek and share support. The study aimed to evaluate what patients encounter when they turn to Instagram for urinary tract infection-related support and advice. Methods: The first 200 posts appearing on the "top posts" section of Instagram for 6 key hashtags (#UTI, #UTIs, #urinarytractinfection, #urinarytractinfections, #bladderin- fection, #bladderinfections) were selected. Thematic analysis (TA) was used to identify themes present in the Instagram captions. Results: Across 1200 posts analyzed, 5 main themes were identified. 1) "We can help…," this was largely commercial advertising with the promotion of healthcare clinics. 2) "I'm suffering," which contained first-person narratives about an unpleasant experience with a disease or treatment as well as frustration at health services. 3)!"Warning signs," posts describing signs or symptoms that the creator claims indicate poor health. 4)!"Remedies," these posts detailed therapies to try, often herbal. 5) "Avoid and change," which covered triggers to avoid symptom flare ups. Conclusion: There is a large amount of content on social media related to UTIs. Urologists should be aware that patients may have sought out advice using these platforms and may therefore have received misinformation and products that have been advertised but lack scientific evidence.
尿路感染给患者带来沉重负担。社交媒体越来越多地被用作患者和公众寻求和分享支持的平台。本研究旨在评估患者在向Instagram寻求尿路感染相关支持和建议时会遇到什么情况。方法:从Instagram上6个关键主题标签(#UTI、#UTIs、#urinarytractinfection、#urinarytractinfections、#bladderin - fection、#bladderinfections)的“热门帖子”板块中选取前200条帖子。采用主题分析法(TA)来识别Instagram帖子说明中呈现的主题。结果:在分析的1200条帖子中,识别出5个主要主题。1)“我们能帮……”,这主要是推广医疗诊所的商业广告。2)“我在受苦”,其中包含关于疾病或治疗不愉快经历的第一人称叙述以及对医疗服务的不满。3)“警示信号”,帖子描述了创作者声称表明健康状况不佳的体征或症状。4)“疗法”,这些帖子详细介绍了常为草药的尝试疗法。5)“避免和改变”,涵盖避免症状复发的触发因素。结论:社交媒体上有大量与尿路感染相关的内容。泌尿科医生应意识到患者可能已使用这些平台寻求建议,因此可能收到了错误信息以及已做广告但缺乏科学依据的产品。