Alons Eline, van Ewijk Lizet, Luinge Margreet Roelien, Ter Wal Nicole, Methorst Tonny, Gerrits Ellen, Terwee Caroline Barbara
Research Centre Healthy and Sustainable Living, HU University of Applied Sciences, Utrecht, The Netherlands.
Department of Languages, Literature and Communication, Institute for Language Sciences (ILS), Utrecht University, Utrecht, The Netherlands.
J Patient Rep Outcomes. 2025 Jul 10;9(1):86. doi: 10.1186/s41687-025-00913-1.
Communicative participation is the most important outcome of speech and language therapy, but there are no measurement instruments for children, adolescents, and young adults. This paper describes the development of MyCommunication-Youth: an item bank to measure self-reported communicative participation in children, adolescents and young adults with various communication disorders.
Based on a literature review and two concept elicitation studies three initial versions of item pools were developed: one for children, one for adolescents and one for young adults. These pools were pilot tested, using cognitive debriefing interviews, on comprehensibility and comprehensiveness in a diverse group of participants with communication difficulties, whereafter a second version of the item pools were created. Hereafter, the content validity was assessed in the target population and in a group of speech and language therapists.
Initially, three item pools were created for children (58 items), adolescents (78 items), and young adults (84 items). In the pilot test with 33 children adolescents and young adults with communication difficulties, items were revised for comprehensibility, some items were added for comprehensiveness, and some items were deleted because they appeared irrelevant, resulting in updated pools of 50, 69, and 72 items. In the content validity study, cognitive interviews with 27 participants and a focus group with 8 professionals identified additional revisions. Most items were comprehensible, but some were irrelevant for specific subpopulations of communication difficulties. Two new items were added after the input of professionals, whereafter the item bank was found comprehensive.
MyCommunication-Youth is an item bank for measuring communicative participation in children, adolescents and young adults with various communication difficulties. Three versions of the instrument were created: MyCommunication-Children of 49 items, MyCommunication-Adolescents of 70 items and MyCommunication-YoungAdults of 73 items. The item bank is comprehensible, relevant and comprehensive according to the target population and target professionals.
沟通参与是言语和语言治疗最重要的结果，但针对儿童、青少年和青年尚无测量工具。本文描述了“我的沟通-青年版”的开发过程：这是一个用于测量患有各种沟通障碍的儿童、青少年和青年自我报告的沟通参与情况的题库。
1）开发一个全面、易懂的题库，用于测量有沟通问题的儿童、青少年和青年的沟通参与情况。2）在这些群体的样本中评估该题库的内容效度。3）确定有沟通困难的儿童能够自我报告其沟通参与情况的最小年龄标准。
基于文献综述和两项概念启发研究，开发了三个初始版本的项目池：一个针对儿童，一个针对青少年，一个针对青年。通过认知反馈访谈，在一群有沟通困难的不同参与者中对这些项目池进行了预测试，以评估其可理解性和全面性，之后创建了项目池的第二个版本。此后，在目标人群和一组言语和语言治疗师中评估了内容效度。
最初，为儿童创建了一个包含58个条目的项目池，为青少年创建了一个包含78个条目的项目池，为青年创建了一个包含84个条目的项目池。在对33名有沟通困难的儿童、青少年和青年进行的预测试中，对条目进行了修改以提高可理解性，增加了一些条目以提高全面性，删除了一些显得无关的条目，从而形成了分别包含50、69和72个条目的更新项目池。在内容效度研究中，对27名参与者进行的认知访谈和与8名专业人员进行的焦点小组讨论确定了更多的修订内容。大多数条目是可理解的，但有些对特定沟通困难亚群体不相关。在专业人员提出意见后增加了两个新条目，之后发现该题库具有全面性。
“我的沟通-青年版”是一个用于测量患有各种沟通困难的儿童、青少年和青年沟通参与情况的题库。创建了该工具的三个版本：包含49个条目的“我的沟通-儿童版”、包含70个条目的“我的沟通-青少年版”和包含73个条目的“我的沟通-青年版”。根据目标人群和目标专业人员的反馈，该题库具有可理解性、相关性和全面性。
