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围产期婴儿死亡家庭成员的经历与需求:一项元综合分析

Experiences and needs of family members of perinatal infant deaths: a meta-synthesis.

作者信息

Cui Nana, Wu Shasha, Wang Xiaoyun, Sheng Lei

机构信息

Neonatal Ward, Jining No.1 People's Hospital, Jining, Shandong, China.

Nursing Department, Jining No.1 People's Hospital, Jining, Shandong, China.

出版信息

Front Public Health. 2025 Jul 1;13:1580039. doi: 10.3389/fpubh.2025.1580039. eCollection 2025.

DOI:10.3389/fpubh.2025.1580039
PMID:40666156
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12261921/
Abstract

PURPOSE

This meta-review of qualitative studies aims to explore the experiences and needs of family members following perinatal infant deaths.

DESIGN

A qualitative meta-synthesis was conducted.

DATA SOURCES

Four databases, PubMed, CINAHL, EMBASE, and Web of Science, were searched from inception through November 2024. An initial search using the keywords "perinatal death", "family members", and "qualitative research" retrieved 496 articles. Based on predefined inclusion and exclusion criteria, 10 studies were selected for inclusion.

REVIEW METHODOLOGY

The Critical Appraisal Skills Programme (CASP) Qualitative Research Checklist was used to assess the quality of included studies.

RESULTS

Ten studies from nine countries were analyzed, yielding five overarching themes: negative emotional reactions, searching for the cause of death, rebuilding of life, reconstruction of meaning, and need for support.

CONCLUSION

Negative emotional responses are an inevitable and profound part of the bereavement process for families experiencing perinatal loss. Identifying the cause of death helps families understand their loss and reduces uncertainty and self-blame. Central to the grieving process is the reconstruction of emotional and psychological meaning, which involves redefining life's purpose and gradually restoring a sense of normalcy. However, many of these families' needs remain unmet. There is an urgent need for multidisciplinary strategies to provide comprehensive, tailored support.

摘要

目的

本对定性研究的元综述旨在探讨围产期婴儿死亡后家庭成员的经历和需求。

设计

进行了定性元综合分析。

数据来源

检索了四个数据库,即从创刊至2024年11月的PubMed、CINAHL、EMBASE和科学网。最初使用关键词“围产期死亡”、“家庭成员”和“定性研究”进行检索,共检索到496篇文章。根据预先确定的纳入和排除标准,选择了10项研究纳入。

综述方法

使用批判性评估技能计划(CASP)定性研究清单来评估纳入研究的质量。

结果

分析了来自9个国家的10项研究,得出了五个总体主题:负面情绪反应、寻找死亡原因、生活重建、意义重构和支持需求。

结论

负面情绪反应是经历围产期丧亲之痛的家庭丧亲过程中不可避免且深刻的一部分。确定死亡原因有助于家庭理解他们的损失,并减少不确定性和自责。悲伤过程的核心是情感和心理意义的重构,这涉及重新定义生活目标并逐渐恢复正常感。然而,这些家庭的许多需求仍未得到满足。迫切需要多学科策略来提供全面、量身定制的支持。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0de5/12261921/12155ad221ef/fpubh-13-1580039-g0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0de5/12261921/12155ad221ef/fpubh-13-1580039-g0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0de5/12261921/12155ad221ef/fpubh-13-1580039-g0001.jpg

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本文引用的文献

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Int J Nurs Stud. 2024 Dec;160:104863. doi: 10.1016/j.ijnurstu.2024.104863. Epub 2024 Aug 6.
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Experiences and needs of family members following sudden cardiac death: A meta-synthesis.突发心源性死亡患者家属的经历和需求:一项元综合分析。
Int J Nurs Stud. 2024 Dec;160:104872. doi: 10.1016/j.ijnurstu.2024.104872. Epub 2024 Aug 6.
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The impact of midwife/nurse-led psychosocial interventions on parents experiencing perinatal bereavement: An integrative review.
助产士/护士主导的心理社会干预对经历围产期丧亲之痛的父母的影响:一项综合综述。
Int J Nurs Stud. 2024 Sep;157:104814. doi: 10.1016/j.ijnurstu.2024.104814. Epub 2024 May 21.
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An exploration of women's lived experiences of care and support following perinatal death in South-Western Nigeria: A hermeneutic phenomenological study.在尼日利亚西南部,对围产期死亡后妇女的护理和支持的真实体验的探索:一种阐释现象学研究。
Women Birth. 2024 Mar;37(2):348-354. doi: 10.1016/j.wombi.2023.11.004. Epub 2023 Nov 29.
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Parents experiences of pregnancy following perinatal loss: An integrative review.围产期损失后父母的怀孕经历:一项综合综述。
Midwifery. 2023 Jun;121:103673. doi: 10.1016/j.midw.2023.103673. Epub 2023 Mar 30.
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Women's experiences of care and support following perinatal death in high burden countries: A metasynthesis.高负担国家围产期死亡后女性的护理和支持经历:一项综合分析。
Women Birth. 2023 Mar;36(2):e195-e202. doi: 10.1016/j.wombi.2022.07.170. Epub 2022 Aug 1.
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"Your heart keeps bleeding": lived experiences of parents with a perinatal death in Northern Uganda.“你的心一直在流血”:乌干达北部一对经历围产期死亡的父母的生活经历。
BMC Pregnancy Childbirth. 2022 Jun 15;22(1):491. doi: 10.1186/s12884-022-04788-8.
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J Palliat Care. 2022 Jul;37(3):381-400. doi: 10.1177/08258597211062762. Epub 2022 Mar 30.
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