Carroll Sandra L, McGillion Michael, Abelson Julia, Berkesse Alexandre, Healey Jeff S
School of Nursing, McMaster University - 2J20, 1280 Main Street West, Hamilton, Ontario L8S 4K1, Canada.
Population Health Research Institute, 237 Barton Street East, Hamilton, Ontario L8L 2X2, Canada.
PEC Innov. 2025 Jun 27;7:100417. doi: 10.1016/j.pecinn.2025.100417. eCollection 2025 Dec.
We describe a Patient Engagement Day from the Canadian Stroke Prevention Network (C-SPIN). Patients and family members were engaged as patient partners to generate and prioritize future direction for Atrial Fibrillation (AF) research.
A facilitated group discussion methodology was used that included a nominal group brainstorming and decision-making technique designed to foster participation and idea generation.
Twenty-four patient partners attended. Priorities related to: 1) need for a curative focus and not new medication (84 %), 2) identification of triggers (53 %), and 3) home-based/remote monitoring (53 %). Use of the Public and Patient Engagement Evaluation Tool (PPEET) found patient partners understood the intent of the day, with its objectives being met. Findings highlighted knowledge gaps by patient partners that were previously thought to be understood.
Patient partners could benefit from more focused education about atrial fibrillation. Notably, the priorities identified by patient partners were new to the research team, reinforcing the importance of engaging with the population who will be impacted by the research.
Little research has been undertaken examining patient partner priorities regarding atrial fibrillation research. This work highlights patient partners' interest in providing input and shaping future research endeavors.
我们描述了加拿大卒中预防网络（C-SPIN）举办的患者参与日活动。患者和家庭成员作为患者合作伙伴参与其中，为心房颤动（AF）研究确定未来方向并排出优先顺序。
采用了一种引导式小组讨论方法，其中包括一种名义小组头脑风暴和决策技术，旨在促进参与和想法产生。
24名患者合作伙伴参加了活动。优先事项包括：1）需要关注治愈方法而非新药（84%），2）识别触发因素（53%），以及3）家庭/远程监测（53%）。使用公众和患者参与评估工具（PPEET）发现患者合作伙伴理解了当天活动的意图，且活动目标得以实现。研究结果突出了患者合作伙伴之前被认为已理解的知识差距。
患者合作伙伴可能会从关于心房颤动的更有针对性的教育中受益。值得注意的是，患者合作伙伴确定的优先事项对研究团队来说是新的，这强化了与将受研究影响的人群进行互动的重要性。
关于患者合作伙伴对心房颤动研究的优先事项的研究很少。这项工作突出了患者合作伙伴在提供意见和塑造未来研究工作方面的兴趣。
