Konowałek Łukasz, Kotowska-Bąbol Maja, Łukasik Jan, Remiszewski Piotr, Wolańczyk Tomasz
Department of Child and Adolescent Psychiatry, Medical University of Warsaw, Warsaw, Poland.
Department of Paediatrics, Medical University of Warsaw, Warsaw, Poland.
Front Psychiatry. 2025 Jul 9;16:1554368. doi: 10.3389/fpsyt.2025.1554368. eCollection 2025.
Parents of children with autism often experience unique challenges that can impact their emotional wellbeing. The aim of this study was to validate the Polish adaptation of the Quality of Life in Autism Survey (QoLA) and to examine the factors influencing quality of life (QoL) among parents of children with autism spectrum disorder (ASD). The survey was administered to 372 participants, predominantly mothers, and assessed QoL using the QoLA-A and QoLA-B scales alongside established tools such as the Beck Depression Inventory and WHOQOL-BREF. Results showed high reliability for the QoLA-A scale, supported by Cronbach's alpha (0.93) and omega coefficients, and confirmed an 8-factor model consistent with Schalock's domains of QoL. The scale showed strong correlations with psychological health, social relationships and environmental factors, validating its criterion and construct reliability. Conversely, QoLA-B showed limitations, capturing only five dimensions and explaining less than 50% of the variance. Important predictors of parental QoL included employment status, material well-being and depressive symptoms, with externalising behaviours in children having a significant negative influence. Intellectual and communication disabilities, although a significant challenge, were not strongly correlated with parental QoL. The findings highlight the need to address socio-economic and mental health support for caregivers, with an emphasis on tailored interventions that enhance parental wellbeing, rather than exclusively targeting child-specific therapies. This comprehensive validation highlights the utility of the QoLA-A and the nuanced factors that influence caregiver QoL.
自闭症儿童的家长常常面临一些独特的挑战，这些挑战会影响他们的情绪健康。本研究的目的是验证自闭症生活质量调查问卷（QoLA）波兰语版的有效性，并探讨影响自闭症谱系障碍（ASD）儿童家长生活质量（QoL）的因素。该调查对372名参与者进行了施测，其中主要是母亲，并使用QoLA - A和QoLA - B量表以及如贝克抑郁量表和世界卫生组织生活质量简表（WHOQOL - BREF）等既定工具对生活质量进行评估。结果显示，QoLA - A量表具有较高的信度，克朗巴哈系数（0.93）和欧米伽系数均支持这一点，并确认了一个与沙洛克生活质量领域一致的8因素模型。该量表与心理健康、社会关系和环境因素显示出强相关性，验证了其效标效度和结构效度。相反，QoLA - B量表存在局限性，仅涵盖五个维度，且解释的方差不到50%。家长生活质量的重要预测因素包括就业状况、物质幸福和抑郁症状，儿童的外化行为有显著的负面影响。智力和沟通障碍虽然是一个重大挑战，但与家长生活质量的相关性不强。研究结果强调需要为照顾者提供社会经济和心理健康支持，重点是制定能提高家长幸福感的针对性干预措施，而不是仅仅针对儿童特定疗法。这种全面的验证突出了QoLA - A量表的效用以及影响照顾者生活质量的细微因素。
