Alasiri Rahaf Mohammed, Albarrak Danah Abdullah, Alghaith Deemah Meshal, Alsayari Ohoud Saad, Alqahtani Yasmeen Salem, Bafarat Ammar Y, Tashkandi Noha Farouk
Medicine, King Saud Bin Abdulaziz University for Health Sciences College of Medicine, Riyadh, SAU.
Psychiatry, King Abdulaziz Hospital, Jeddah, SAU.
Cureus. 2024 Jan 4;16(1):e51645. doi: 10.7759/cureus.51645. eCollection 2024 Jan.
Autism spectrum disorder (ASD) is a neurobehavioral condition marked by social interaction challenges, communication deficits, and repetitive behaviors, with studies in Saudi Arabia showing varying prevalence rates in different regions. This study aimed to evaluate the social context of autistic children and the quality of life (QOL) for families of children with autism utilizing the Beach Center Family Quality of Life Scale (BCFQOL).
This cross-sectional study, conducted at King Abdulaziz Medical City in Saudi Arabia over a six-month period, included ASD children aged 1-14 years. The QOL was measured using the BCFQOL scale for families. Data were analyzed using the Jamovi software (Windows version 2.4.1, the Jamovi Project, retrieved from https://www.jamovi.org).
A total of 102 responses were collected in the study. The overall satisfaction score was 93.6±16.6 out of 125, with 85.3% of participants expressing satisfaction. Domains explored included family interaction (23.8±5.29 out of 30), parenting practices (23.9±3.83 out of 30), emotional well-being (13.1±4.16 out of 20), physical and material well-being (18.7±4.24 out of 25), and disability-related support (14.2±4.0 out of 20). In terms of specific sociodemographic factors, no statistically significant differences in satisfaction were observed across various categories.
Families of children with ASD in Saudi Arabia generally report high levels of satisfaction, as assessed by the BCFQOL. The study covered various domains, including family interaction, parenting practices, emotional well-being, physical well-being, and disability-related support, with most respondents expressing satisfaction in these areas. Notably, sociodemographic factors did not significantly influence satisfaction levels, underscoring the pervasive nature of the findings across different demographic groups. Further studies with a larger sample size and a longer follow-up period are required to validate these findings.
自闭症谱系障碍（ASD）是一种神经行为疾病，其特征为社交互动困难、沟通障碍和重复行为，沙特阿拉伯的研究表明不同地区患病率有所不同。本研究旨在使用海滩中心家庭生活质量量表（BCFQOL）评估自闭症儿童的社会环境以及自闭症儿童家庭的生活质量（QOL）。
这项横断面研究在沙特阿拉伯阿卜杜勒阿齐兹国王医疗城进行，为期六个月，纳入了1至14岁的自闭症谱系障碍儿童。使用BCFQOL量表对家庭的生活质量进行测量。数据使用Jamovi软件（Windows版本2.4.1，Jamovi项目，从https://www.jamovi.org获取）进行分析。
本研究共收集到102份回复。总体满意度得分在满分125分中为93.6±16.6，85.3%的参与者表示满意。所探讨的领域包括家庭互动（满分30分中得23.8±5.29）、育儿方式（满分30分中得23.9±3.83）、情绪健康（满分20分中得13.1±4.16）、身体和物质健康（满分25分中得18.7±4.24）以及与残疾相关的支持（满分20分中得14.2±4.0）。就具体的社会人口学因素而言，各类别之间在满意度方面未观察到统计学上的显著差异。
根据BCFQOL评估，沙特阿拉伯自闭症谱系障碍儿童的家庭总体报告满意度较高。该研究涵盖了多个领域，包括家庭互动、育儿方式、情绪健康、身体健康以及与残疾相关的支持，大多数受访者在这些方面表示满意。值得注意的是，社会人口学因素并未显著影响满意度水平，这突出了研究结果在不同人口群体中的普遍性。需要进行更大样本量和更长随访期的进一步研究来验证这些发现。
