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国际疾病分类支持小组:它们现在仍然相关吗?

ICD support groups: Are they still relevant now?

作者信息

Sears Samuel F, McCrary Samantha, Andrade Tiffany, Rousseau Lauren, Kirkness Ann, Fantin Allana, Shea Julie B

机构信息

Department of Psychology, East Carolina University, Greenville, North Carolina.

Department of Cardiovascular Sciences, East Carolina University, Greenville, North Carolina.

出版信息

Heart Rhythm O2. 2025 Apr 3;6(6):874-879. doi: 10.1016/j.hroo.2025.03.021. eCollection 2025 Jun.

DOI:10.1016/j.hroo.2025.03.021
PMID:40717855
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12287944/
Abstract

While implantable cardioverter-defibrillators (ICDs) save lives in patients at risk for potentially life-threatening arrhythmias, ICD shocks may prompt fear and anxiety and cause potential psychological trauma in patients. Since the beginning of the ICD's broad use, healthcare professionals recognized the unique demands and experiences associated with this therapy. Some clinics responded by initiating patient-focused meetings broadly referred to as "ICD support groups" to address the mental health challenges in these patients. Decades of research have now underscored the importance of ICD patients' psychological and behavioral processes and their associations with adverse health outcomes. ICD patients frequently report disease-specific mental health symptoms, including ICD shock anxiety, poor device acceptance, body image concerns, and decreased physical activity, that require unique clinical expertise from professionals to effectively manage. The original impetus for ICD support groups persists, but relatively few ICD support groups remain active. Online offerings may have taken on some of these functions. We suggest that ICD support groups remain a strategic intervention to address patient psychological and lifestyle concerns. This paper reviews the value of ICD support groups in the United States, Australia, and Canada and analyzes the current state and potential value of ICD support groups.

摘要

虽然植入式心脏复律除颤器(ICD)能挽救有潜在致命性心律失常风险的患者生命,但ICD电击可能会引发患者的恐惧和焦虑,并造成潜在的心理创伤。自ICD广泛应用以来,医疗保健专业人员就认识到了这种治疗方法所带来的独特需求和体验。一些诊所通过发起以患者为中心的会议(通常称为“ICD支持小组”)来应对这些患者的心理健康挑战。数十年的研究现已强调了ICD患者心理和行为过程的重要性及其与不良健康结果的关联。ICD患者经常报告特定疾病的心理健康症状,包括ICD电击焦虑、对设备接受度低、身体形象问题以及身体活动减少,这些都需要专业人员具备独特的临床专业知识才能有效管理。ICD支持小组最初的推动力依然存在,但仍在积极运作的ICD支持小组相对较少。在线服务可能已经承担了其中的一些功能。我们建议ICD支持小组仍然是一种应对患者心理和生活方式问题的战略干预措施。本文回顾了美国、澳大利亚和加拿大ICD支持小组的价值,并分析了ICD支持小组的现状和潜在价值。

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本文引用的文献

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Temporal changes in device-derived daily activity related to ventricular arrhythmias from the CERTITUDE registry.来自CERTITUDE注册研究中与室性心律失常相关的器械衍生每日活动的时间变化。
Heart Rhythm O2. 2024 Aug 20;5(11):805-812. doi: 10.1016/j.hroo.2024.07.020. eCollection 2024 Nov.
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Perceived benefits of patient support groups and their format for people with an implantable cardioverter defibrillator.植入式心脏复律除颤器患者对患者支持小组及其形式的感知益处。
Heart Lung. 2024 Sep-Oct;67:152-157. doi: 10.1016/j.hrtlng.2024.05.005. Epub 2024 May 19.
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The effect of virtual interactive nurse-led support group intervention on fatigue, shock anxiety, and acceptance of implantable cardioverter defibrillator patients: a randomized trial.虚拟互动护士主导的支持小组干预对植入式心脏复律除颤器患者疲劳、休克焦虑和接受程度的影响:一项随机试验。
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Burden of mood symptoms and disorders in implantable cardioverter defibrillator patients: a systematic review and meta-analysis of 39 954 patients.植入式心脏复律除颤器患者心境症状和障碍的负担:39954 例患者的系统评价和荟萃分析。
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Benefits of support groups for patients living with implantable cardioverter defibrillators: a mixed-methods systematic review and meta-analysis.支持小组对植入式心脏除颤器患者的益处:一项混合方法系统评价和荟萃分析。
Open Heart. 2022 Oct;9(2). doi: 10.1136/openhrt-2022-002021.
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Efficacy of ICD/CRT-D Remote Monitoring in Patients With HFrEF: a Bayesian Meta-analysis of Randomized Controlled Trials.ICD/CRT-D 远程监测在射血分数降低心衰(HFrEF)患者中的疗效:一项基于随机对照试验的贝叶斯荟萃分析。
Curr Heart Fail Rep. 2022 Dec;19(6):435-444. doi: 10.1007/s11897-022-00579-6. Epub 2022 Oct 7.
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Gen Hosp Psychiatry. 2022 Sep-Oct;78:96-107. doi: 10.1016/j.genhosppsych.2022.07.008. Epub 2022 Jul 22.
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Delivering an efficient and effective support group for patients with implantable cardioverter-defibrillators (ICDs): patient perspectives of key concerns and predictors of inclination to attend.为植入式心脏复律除颤器(ICD)患者提供高效且有效的支持小组:患者对关键问题的看法及参与意愿的预测因素
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