Fu Jason Jincheng, Wong Joey Oi Yee, Gregorio Mario, Hung Lillian
School of Biomedical Engineering, University of British Columbia, Vancouver, Canada.
School of Nursing, University of British Columbia, Vancouver, Canada.
J Prim Care Community Health. 2025 Jan-Dec;16:21501319251360518. doi: 10.1177/21501319251360518. Epub 2025 Jul 31.
As recognition grows around the need for equitable, person-centered engagement for people living with neurocognitive disorders or dementia, accessible community programs that challenge stigma and foster inclusion remain limited. This program presents a 12-week ukulele learning program co-led by a person living with dementia that advances health equity by promoting inclusion, empowerment, and social connection through music. Developed through a university-community partnership, the program was intentionally designed to welcome participants from diverse cultural backgrounds and cognitive abilities into an accessible and supportive environment. Unlike conventional music-based interventions, the initiative emphasized active skill development, co-leadership, and intergenerational collaboration. Qualitative reflections from the program leads and team members identified 4 key themes: (1) confronting stigma and reimagining capacity; (2) fostering social inclusion and connectedness; (3) creating shared joy and respite for care partners; and (4) encouraging mutual learning and support. Participants emphasized the program as transformative in advancing health equity by challenging dominant deficit-based narratives, affirming the strengths of individuals often marginalized in traditional care settings. This initiative offers a scalable model for an inclusive, community-driven approach to enhance quality of life, strengthen relationships among people living with dementia and their care partners, and promote equitable health outcomes for people living with dementia.
随着人们越来越认识到需要为患有神经认知障碍或痴呆症的人提供公平、以人为本的参与机会，能够消除耻辱感并促进包容的社区项目仍然有限。该项目推出了一个为期12周的尤克里里学习项目，由一名痴呆症患者共同牵头，通过音乐促进包容、赋权和社会联系，从而推动健康公平。该项目通过大学与社区的合作开发，旨在有意营造一个无障碍且支持性的环境，欢迎来自不同文化背景和认知能力的参与者。与传统的基于音乐的干预措施不同，该倡议强调积极的技能培养、共同领导和代际合作。项目负责人和团队成员的定性反思确定了4个关键主题：（1）直面耻辱感并重新构想能力；（2）促进社会包容和联系；（3）为护理伙伴创造共同的快乐和喘息机会；（4）鼓励相互学习和支持。参与者强调，该项目具有变革性，通过挑战基于缺陷的主流叙事，肯定了在传统护理环境中常被边缘化的个人的优势，从而推动了健康公平。该倡议为一种包容性的、由社区驱动的方法提供了一个可扩展的模式，以提高生活质量，加强痴呆症患者及其护理伙伴之间的关系，并促进痴呆症患者的公平健康结果。
