Supportive care needs related to the sexual quality of life of the spouses of ostomy patients diagnosed with colorectal cancer: a descriptive phenomenological study.

PURPOSE

This study aimed to evaluate supportive care needs related to the sexual quality of life of spouses of patients diagnosed with colorectal cancer and living with an ostomy.

METHODS

In-depth individual interviews were conducted with 40 spouses selected through purposive sampling. The data were analyzed via Colaizzi's phenomenological analysis steps.

RESULTS

Four main themes emerged: challenges in sexual life, the ability to reconstruct sexuality, sexuality-oriented supportive care needs, future perceptions and hopes in the context of sexuality and relationships. Spouses reported that physical symptoms, body image changes, and caregiving responsibilities negatively affected their sexual lives. Many experienced difficulties discussing sexuality, often influenced by social norms that inhibit open communication. Some couples attempt to rebuild closeness through emotional bonding and adjusting physical intimacy. Needs related to sexual health education, psychological support, and access to financial resources were frequently emphasized.

CONCLUSION

These findings demonstrate that spouses are not only caregivers but also emotionally and sexually affected by the illness process. Therefore, supportive care practices should expand beyond patient-centered approaches to incorporate couple-based interventions. Psycho-oncology nurses should be trained to identify and address spouses' needs for sexual health information, counseling, and emotional support. Sexuality-related discussions should be integrated into routine care. Furthermore, structured psychoeducational programs that encourage open communication and help rebuild intimacy should be developed for couples. These programs should be inclusive, evidence-based, and accessible both in clinical settings and through online platforms. Addressing the unmet needs of spouses may enhance overall couple well-being and improve the quality of survivorship care.