坦桑尼亚北部基于文化的 Cataldo 癌症污名量表的适应性和心理计量学特性。
Culturally-informed adaptation and psychometric properties of the Cataldo Cancer Stigma Scale in Northern Tanzania.
机构信息
Duke University School of Nursing, Durham, NC, USA.
Duke Global Health Institute, Duke University, Durham, NC, USA.
出版信息
J Psychosoc Oncol. 2024;42(2):286-298. doi: 10.1080/07347332.2023.2241458. Epub 2023 Aug 3.
BACKGROUND
Cancer-related stigma impacts patients' emotional health, care engagement, and cancer outcomes, but few measures of cancer stigma exist. We culturally adapted and assessed psychometric properties of the Cataldo Cancer Stigma Scale (CCSS) in Tanzania.
METHODS
We administered the CCSS short version (21 items), plus 12 locally-derived items, to 146 adult cancer patients. We conducted exploratory factor analysis, examined internal consistency/reliability, and assessed convergent validity with relevant measures.
RESULTS
We identified a 17-item cancer stigma scale with strong psychometric properties and four subscales: enacted stigma, shame and blame, internalized stigma, and disclosure concerns. Stigma was rare except for disclosure concerns. Stigma was positively associated with depression and anxiety and negatively associated with social support, quality of life, and illness acceptance.
CONCLUSIONS
The scale provides valid, culturally-informed measurement of cancer stigma in Tanzania. Future studies should assess associations with care engagement, which will inform interventions to reduce stigma and improve outcomes.
背景
癌症相关的耻辱感会影响患者的情绪健康、治疗参与度和癌症结局，但目前几乎没有专门用于衡量癌症耻辱感的工具。我们在坦桑尼亚对 Cataldo 癌症耻辱感量表（CCSS）进行了文化适应性改编和心理测量学特性评估。
方法
我们对 146 名成年癌症患者进行了 CCSS 短版本（21 项）和 12 项本地衍生项目的调查。我们进行了探索性因素分析，检验了内部一致性/可靠性，并评估了与相关测量指标的聚合效度。
结果
我们确定了一个具有良好心理测量学特性的 17 项癌症耻辱感量表，包含 4 个分量表：实施性耻辱感、羞耻和责备、内化的耻辱感和披露顾虑。除了披露顾虑外，耻辱感的发生率较低。耻辱感与抑郁和焦虑呈正相关，与社会支持、生活质量和疾病接受度呈负相关。
结论
该量表为坦桑尼亚提供了一种有效的、具有文化敏感性的癌症耻辱感测量工具。未来的研究应评估与治疗参与度的关联，这将为减少耻辱感和改善结局的干预措施提供信息。
Zotero 插件