Chavez-Yenter Daniel, Holton Avery, Vega Alexis, Zamora Ginger, Kaphingst Kimberly A
Department of Communication, University of Utah, Salt Lake City, Utah, USA.
Utah Center for Excellence in ELSI Research, University of Utah, Salt Lake City, Utah, USA.
Howard J Commun. 2023;34(5):559-575. doi: 10.1080/10646175.2023.2228232. Epub 2023 Jul 12.
Genetic testing (GT) for health purposes has grown exponentially in the past decade, with the ability to prescribe precision medicine regiments as well as preventative and preparatory actions. White and English-speaking populations have largely benefited from GT, leaving other groups, like Latinx populations, behind. Explanations for this disparity have cited a lack of awareness and knowledge of GT for health purposes but have generally only been studied in clinical settings. Mass and news media have virtually ignored this disparity. English-language news coverage of GT for health purposes has linked coverage to views of genetic determinism. Spanish-language news coverage of GT for health purposes has cited no published data, thus the current study is the first to characterize health-focused articles on GT from two U.S. Spanish-language news outlets, Telemundo and Univision. From March 2008 to August 2020, we identified only 49 published stories on health-focused stories on GT. Stories focused mostly on cancer and fertility types of GT and often did not attribute an author to the story. Spanish-language coverage is limited and may be contributing to the lack of knowledge of GT for health purposes. We offer potential future research opportunities in genomics from a mass media perspective.
在过去十年中,用于健康目的的基因检测(GT)呈指数级增长,它能够制定精准医疗方案以及采取预防和准备措施。白人和说英语的人群在很大程度上受益于基因检测,而其他群体,如拉丁裔群体,则被落在了后面。对这种差异的解释提到了对用于健康目的的基因检测缺乏认识和了解,但通常仅在临床环境中进行过研究。大众媒体和新闻媒体几乎忽略了这种差异。英语新闻对用于健康目的的基因检测的报道将其与基因决定论的观点联系起来。西班牙语新闻对用于健康目的的基因检测的报道没有引用已发表的数据,因此本研究首次对来自美国两家西班牙语新闻媒体—— Telemundo和Univision——关于基因检测的关注健康的文章进行了特征描述。从2008年3月到2020年8月,我们仅发现了49篇关于基因检测的关注健康的已发表报道。这些报道大多聚焦于癌症和生育方面的基因检测,而且报道往往没有署名。西班牙语报道有限,这可能导致了对用于健康目的的基因检测缺乏了解。我们从大众媒体的角度提供了基因组学未来潜在的研究机会。