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糖尿病肾病患者家庭腹膜透析自我管理行为的决策体验:一项基于计划行为理论的定性研究

The Decision-Making Experience of Self-Management Behaviors in Home Peritoneal Dialysis for Patients with Diabetic Nephropathy: A Qualitative Study Using the Theory of Planned Behavior.

作者信息

Song Zihao, Xiao Yuping, Su Yanjin, Qin Gangxin, Yang Jinxin

机构信息

Department of Clinical Medicine of Traditional Chinese and Western Medicine, The First Clinical Medical College of Shaanxi University of Chinese Medicine, Xianyang, People's Republic of China.

School of Nursing, Shaanxi University of Traditional Chinese Medicine, Xianyang, People's Republic of China.

出版信息

Patient Prefer Adherence. 2025 Jul 31;19:2283-2294. doi: 10.2147/PPA.S537890. eCollection 2025.

Abstract

PURPOSE

Self-management among diabetic kidney disease(DKD) patients receiving home peritoneal dialysis(PD) remains a significant challenge, warranting further exploration. In this study, the Theory of Planned Behavior (TPB) was used to clarify patients' decision-making processes and understand the reasons for adhering to and changing behaviors.

METHODS

Semi-structured interviews were conducted with 16 DKD patients who were undergoing follow-up and receiving home PD. The TPB was applied to formulate the interview themes and provide information for the Interpretative Phenomenological Analysis (IPA) method used.

RESULTS

A total of 3 themes and 7 sub-themes were summarized, namely attitude towards behavior, where physical and mental perception affects the decision-making attitude (the positive feedback of improved physical function strengthens the decision-making attitude; the two-way influence of emotions catalyzes the decision-making attitude); subjective norm, where social factors drive the decision-making belief (the behavioral outcomes of peers transform the decision-making belief; the continuity of medical and nursing services consolidates the decision-making belief; the motivation of social feedback stimulates the decision-making belief); perceived behavioral control, where self-perception influences the decision-making intention (positive self-efficacy motivates the decision-making intention; the limitation of external resources restricts the decision-making intention).

CONCLUSION

For the management of home PD in patients with DKD, efforts can be made to improve patients' decision-making in self-management of home PD by strengthening the positive feedback of psychological experiences in behavioral decision-making, exploring digital peer support platforms and social support networks for such patients to improve the mechanism of patients' active participation in decision-making within social support networks, and improving the community support system from multiple dimensions such as incorporating relevant policies into assessment criteria, coordinating funds through multiple channels, enhancing the capabilities of community medical and nursing teams, and encouraging doctor-patient shared decision-making, thereby exploring and constructing a community assistance model for the management of home PD in patients with DKD.

摘要

目的

对于接受家庭腹膜透析(PD)的糖尿病肾病(DKD)患者而言,自我管理仍是一项重大挑战,值得进一步探索。在本研究中,计划行为理论(TPB)被用于阐明患者的决策过程,并理解其坚持和改变行为的原因。

方法

对16例正在接受随访且进行家庭PD的DKD患者进行了半结构式访谈。运用TPB来制定访谈主题,并为所采用的解释现象学分析(IPA)方法提供信息。

结果

共总结出3个主题和7个子主题,即行为态度,其中身心感知影响决策态度(身体功能改善的积极反馈强化决策态度;情绪的双向影响催化决策态度);主观规范,其中社会因素驱动决策信念(同伴的行为结果转变决策信念;医护服务的连续性巩固决策信念;社会反馈的动机激发决策信念);感知行为控制,其中自我认知影响决策意图(积极的自我效能激发决策意图;外部资源的限制制约决策意图)。

结论

对于DKD患者的家庭PD管理,可通过强化行为决策中心理体验的积极反馈,探索此类患者的数字同伴支持平台和社会支持网络,以改善患者在社会支持网络中积极参与决策的机制,并从将相关政策纳入评估标准、多渠道协调资金、提升社区医护团队能力以及鼓励医患共同决策等多个维度完善社区支持系统,从而探索并构建一种DKD患者家庭PD管理的社区援助模式。

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Diabetic Kidney Disease: An Update.糖尿病肾病:最新进展。
Med Clin North Am. 2023 Jul;107(4):689-705. doi: 10.1016/j.mcna.2023.03.004. Epub 2023 Apr 7.

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