Cayci Abdi Berk, Rathbone Adam Pattison, Richardson Charlotte Lucy, Lindsey Laura
School of Pharmacy, Faculty of Medical Sciences, Newcastle University, Newcastle upon Tyne, UK.
Department of Clinical Pharmacy, Faculty of Pharmacy, Hacettepe University, Ankara, Türkiye.
Health Expect. 2025 Aug;28(4):e70378. doi: 10.1111/hex.70378.
Atopic dermatitis (AD) is a long-term skin condition. Transitioning from parent-dependant management to independent self-management, means young adults may experience fluctuations in their care during transition period. However, little is known about the impact this transition has and support young adults receive. From 2026, community pharmacists (CPs) in the UK will be prescribers, a potential source of support for AD management for young adults. This study aimed to explore young adults' experiences of transitioning to self-manage AD with particular emphasis on accessing CP support in self-management.
One-to-one, semi-structured interviews were conducted with 25 young adults aged 18-24 years with AD in the UK. Data was analysed with iterative, inductive thematic analysis. Ethical approval was received before data collection.
Three themes were identified: (i) journey to self-management which shows that transition to self-management came with diverse and unique challenges, (ii) impact of concerns about AD and its treatments on self-management where participants reported concerns about AD symptoms and treatments affecting self-management, (iii) limited use of pharmacy for health advice, in which young adults described poor awareness of CPs as a source of information but as access to prescribed treatment, due to challenges seeing specialists.
Young adults with AD have unique needs and concerns during transition to self-management. Young adults perceived CPs being able to prescribe could support continued access to prescribed treatments, but did not currently consider CPs as a source of advice. Further work is needed by policymakers and practitioners to improve awareness of CPs' skills and roles among young adults, which may help their concerns to be addressed in community pharmacies.
Lived experiences have been central to the development and design of this study. Listening to a family member's experiences of AD inspired the lead author to research young adults' AD management. The data collection process was informed by two people with AD whose advice was sought on how best to approach the topic with young adults and on the topic guide. Changes to wording were made in response to the comments from the two people with AD. Further, after each interview, each young adult participant was asked to give their feedback on the interview guide and how it could be further improved. All participants were happy with the questions and one participant suggested an additional question that had not been included in the topic guide previously. To help the interpretation of study findings informal discussions were conducted with young adults with and without AD. These young adults were not study participants.
特应性皮炎(AD)是一种长期的皮肤疾病。从依赖家长管理过渡到独立自我管理,意味着年轻人在过渡期间的护理可能会出现波动。然而,对于这种过渡所产生的影响以及年轻人所获得的支持,我们知之甚少。从2026年起,英国的社区药剂师(CPs)将成为开处方者,这可能是为年轻人提供AD管理支持的一个来源。本研究旨在探讨年轻人向自我管理AD过渡的经历,特别强调在自我管理中获得CP支持的情况。
对英国25名年龄在18 - 24岁的患有AD的年轻人进行了一对一的半结构化访谈。采用迭代式归纳主题分析法对数据进行分析。在数据收集之前获得了伦理批准。
确定了三个主题:(i)自我管理之旅,表明向自我管理的过渡伴随着多样且独特的挑战;(ii)对AD及其治疗的担忧对自我管理的影响,参与者报告了对AD症状和治疗影响自我管理的担忧;(iii)在健康咨询方面对药房的利用有限,其中年轻人表示对CPs作为信息来源的认识不足,但由于看专科医生存在困难,将其视为获取处方治疗的途径。
患有AD的年轻人在向自我管理过渡期间有独特的需求和担忧。年轻人认为能够开处方的CPs可以支持持续获得处方治疗,但目前并不认为CPs是一个咨询来源。政策制定者和从业者需要进一步开展工作,以提高年轻人对CPs技能和角色的认识,这可能有助于在社区药房解决他们的担忧。
实际生活经历是本研究开展和设计的核心。听取一位家庭成员的AD经历激发了第一作者对年轻人AD管理的研究。数据收集过程参考了两位患有AD的人的意见,就如何最好地与年轻人探讨该主题以及主题指南征求了他们的建议。根据这两位患有AD的人的意见对措辞进行了修改。此外,每次访谈后,每位年轻的参与者都被要求对访谈指南及其如何进一步改进给出反馈。所有参与者对问题都很满意,一位参与者提出了一个之前未包含在主题指南中的额外问题。为了帮助解释研究结果,与患有和未患有AD的年轻人进行了非正式讨论。这些年轻人不是研究参与者。