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基于智能手机的性取向和性别认同少数群体青少年的少数群体压力与自杀意念生态瞬时评估的开发、可行性及可接受性

Development, feasibility, and acceptability of a smartphone-based ecological momentary assessment of minority stress and suicidal ideation among sexual and gender minority youth.

作者信息

Clark Kirsty, Phillips Kaitlyn, Park Elisa, Argiros Alexandra, Nikolaidis-Konstas Alexandros, Sexton Joseph, Cyperski Melissa, Kleiman Evan, Pachankis John

机构信息

Department of Medicine, Health, and Society, Vanderbilt University, Nashville, Tennessee, United States of America.

Department of Psychology and Human Development, Vanderbilt University, Nashville, Tennessee, United States of America.

出版信息

PLoS One. 2025 Aug 12;20(8):e0330204. doi: 10.1371/journal.pone.0330204. eCollection 2025.

Abstract

OBJECTIVE

We sought to develop and assess the feasibility and acceptability of a smartphone-based ecological momentary assessment (EMA) study of minority stress and suicidal ideation intensity among sexual and gender minority youth (SGMY) in the US Southeast.

METHODS

In Study 1, the EMA protocol was developed through an iterative process, incorporating qualitative input from focus groups and interviews with 16 parents of SGMY and 16 SGMY from the US Southeast as well as six clinicians and researchers. In Study 2, 50 SGMY aged 13-24 with past-year suicidal ideation and current depressive symptoms were recruited from the US Southeast. The study included a baseline assessment, 28 consecutive days of EMA surveys (3x per day), a weekly acceptability survey, and a post-study exit interview.

RESULTS

In Study 1, qualitative feedback guided the selection, adaptation, and development of EMA measures and informed study features including the EMA schedule, reminder notifications, incentive structure, and the safety and risk monitoring protocol. In Study 2, the EMA protocol demonstrated feasibility through high compliance with the EMA survey (M = 80.21%, SD = 16.92%, Mdn = 83.93%, range = 38.10%-100.00%) with some variation over time and by participant age. Weekly feedback surveys indicated high acceptability, with participants reporting that the EMA surveys were easy to complete and private, understandable, minimally burdensome, and at least moderately engaging. Exit interviews revealed several themes, including facilitators of high engagement, barriers to engagement, intervention implications, and suggested improvements for future EMA studies.

CONCLUSIONS

Smartphone-based EMA is a feasible and acceptable method for studying real-time experiences of minority stress and suicidal ideation intensity among SGMY at high risk. Incorporating community member feedback during EMA study development can help to ensure cultural responsiveness and enhance participant compliance. This paper provides practical guidance for researchers planning to conduct EMA suicide research with SGMY.

摘要

目的

我们试图在美国东南部开展一项基于智能手机的生态瞬时评估(EMA)研究,以探讨性少数和性别少数青年(SGMY)中的少数群体压力与自杀意念强度之间的关系,并评估该研究的可行性和可接受性。

方法

在研究1中,EMA方案通过迭代过程制定,纳入了焦点小组的定性意见以及对16名美国东南部SGMY的父母、16名美国东南部SGMY以及6名临床医生和研究人员的访谈。在研究2中,从美国东南部招募了50名年龄在13 - 24岁之间、过去一年有自杀意念且目前有抑郁症状的SGMY。该研究包括一次基线评估、连续28天的EMA调查(每天3次)、每周一次的可接受性调查以及研究结束后的退出访谈。

结果

在研究1中,定性反馈指导了EMA测量方法的选择、调整和开发,并为研究特征提供了信息,包括EMA时间表、提醒通知、激励结构以及安全和风险监测方案。在研究2中,EMA方案通过对EMA调查的高依从性(M = 80.21%,标准差 = 16.92%,中位数 = 83.93%,范围 = 38.10% - 100.00%)证明了其可行性,依从性随时间和参与者年龄有所变化。每周的反馈调查表明该方案具有很高的可接受性,参与者报告称EMA调查易于完成、私密、易懂、负担最小且至少具有一定的吸引力。退出访谈揭示了几个主题,包括高参与度的促进因素、参与的障碍、干预的影响以及对未来EMA研究的改进建议。

结论

基于智能手机的EMA是一种可行且可接受的方法,用于研究高风险SGMY中少数群体压力和自杀意念强度的实时体验。在EMA研究开发过程中纳入社区成员的反馈有助于确保文化适应性并提高参与者的依从性。本文为计划对SGMY进行EMA自杀研究的研究人员提供了实用指导。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2900/12342249/546b434571ec/pone.0330204.g001.jpg

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