Annac Kübra, Örs Ela Rana, Öztürk Sümeyra, Basyigit Mualla, Aksakal Tugba, Kuhn Christina, Rutenkröger Anja, Tezcan-Güntekin Hürrem, Yilmaz-Aslan Yüce, Brzoska Patrick
Faculty of Health/School of Medicine, Health Services Research Unit, Witten/Herdecke University, Alfred-Herrhausen-Straße 50, 58455, Witten, Germany.
Alice Salomon University Berlin, Berlin School of Public Health, Berlin, Germany.
BMC Nurs. 2025 Aug 12;24(1):1060. doi: 10.1186/s12912-025-03712-7.
Family caregivers play a crucial role in care for individuals with dementia, particularly in migrant communities such as families of Turkish descent in Germany. However, caregivers often experience high levels of stress due to cultural expectations, family dynamics, and limited access to support services. Traditional self-help approaches frequently fail to address their diverse needs, necessitating innovative strategies to enhance self-management skills and emotional resilience. Storytelling, a method that facilitates knowledge transfer and emotional expression through narratives, has the potential to empower caregivers by fostering empathy, self-reflection, and problem-solving skills. This study aims to develop and evaluate storytelling interventions that are culturally and linguistically tailored to support Turkish family caregivers in managing caregiving challenges more effectively.
A multi-stage methodological approach was used to develop a diversity-sensitive storytelling intervention for Turkish family caregivers of individuals with dementia. The process included a comprehensive needs assessment through a literature review and qualitative secondary data analysis of interviews. Based on these insights, different caregiver personas were identified, each representing different challenges and caregiving roles. Stories were then developed following principles of effective storytelling, incorporating key themes such as stress management, family conflict resolution, and cultural expectations. A quality assessment was conducted using a pretest with caregivers, applying the Community-Based Participatory Research (CBPR) approach to refine narratives based on clarity, accessibility, and relatability.
The study resulted in the creation of nine storytelling packs, each containing five stories tailored to specific caregiver personas. These narratives were developed in German and translated into Turkish and English to ensure linguistic and cultural accessibility. Pretests indicated that the stories resonated with caregivers, addressing their unique caregiving realities while fostering engagement and perceived emotional support. Feedback led to refinements in language style and narrative structure, ensuring greater clarity and identification with the protagonists.
Storytelling shows promise as a supportive intervention for Turkish family caregivers of individuals with dementia by fostering self-management skills and reducing emotional burden. The developed stories provide an inclusive, diversity sensitive approach to addressing caregivers’ challenges, promoting self-reflection, and enhancing support networks. Future research should explore the long-term impact of storytelling interventions and their integration into caregiver support programs to improve well-being and caregiving outcomes.
The online version contains supplementary material available at 10.1186/s12912-025-03712-7.
家庭照顾者在痴呆症患者的护理中发挥着至关重要的作用，尤其是在移民社区，比如德国的土耳其裔家庭。然而，由于文化期望、家庭动态以及获得支持服务的机会有限，照顾者常常承受着高度的压力。传统的自助方法往往无法满足他们多样化的需求，因此需要创新策略来提高自我管理技能和情绪恢复力。讲故事是一种通过叙述促进知识传递和情感表达的方法，它有潜力通过培养同理心、自我反思和解决问题的能力来增强照顾者的能力。本研究旨在开发并评估在文化和语言上进行了针对性调整的讲故事干预措施，以更有效地支持土耳其家庭照顾者应对护理挑战。
采用多阶段方法为患有痴呆症患者的土耳其家庭照顾者开发一种对多样性敏感的讲故事干预措施。该过程包括通过文献综述和访谈的定性二次数据分析进行全面的需求评估。基于这些见解，确定了不同的照顾者角色，每个角色代表不同的挑战和护理角色。然后按照有效讲故事的原则编写故事，纳入压力管理、家庭冲突解决和文化期望等关键主题。通过对照顾者进行预测试进行质量评估，应用基于社区的参与性研究（CBPR）方法，根据清晰度、可及性和相关性来完善叙述。
该研究成果创建了九个讲故事包，每个包包含五个针对特定照顾者角色量身定制的故事。这些叙述以德语编写，并翻译成土耳其语和英语，以确保语言和文化上的可及性。预测试表明，这些故事引起了照顾者的共鸣，在解决他们独特的护理现实问题的同时，促进了参与度和感知到的情感支持。反馈导致语言风格和叙述结构的改进，确保了更高的清晰度以及与主人公的认同感。
讲故事显示出有望成为一种支持性干预措施，通过培养自我管理技能和减轻情感负担，帮助患有痴呆症患者的土耳其家庭照顾者。所编写的故事提供了一种包容性的、对多样性敏感的方法来应对照顾者的挑战，促进自我反思，并加强支持网络。未来的研究应探索讲故事干预措施的长期影响，以及它们如何融入照顾者支持项目，以改善幸福感和护理结果。
在线版本包含可在10.1186/s12912-025-03712-7获取的补充材料。
