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本文引用的文献

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Educational Interventions for Children and Youth with Autism: A 40-Year Perspective.自闭症儿童和青少年的教育干预:四十年的视角。
J Autism Dev Disord. 2021 Dec;51(12):4354-4369. doi: 10.1007/s10803-021-04990-1. Epub 2021 Apr 18.
2
Demystifying Content Analysis.内容分析法解析
Am J Pharm Educ. 2020 Jan;84(1):7113. doi: 10.5688/ajpe7113.
3
Annual Research Review: Looking back to look forward - changes in the concept of autism and implications for future research.年度研究综述:回顾过去,展望未来——自闭症概念的变化及其对未来研究的影响。
J Child Psychol Psychiatry. 2020 Mar;61(3):218-232. doi: 10.1111/jcpp.13176. Epub 2020 Jan 28.
4
Social camouflaging in autism: Is it time to lose the mask?自闭症中的社交伪装:是时候摘下面具了吗?
Autism. 2019 Nov;23(8):1879-1881. doi: 10.1177/1362361319878559. Epub 2019 Sep 25.
5
Compensatory strategies below the behavioural surface in autism: a qualitative study.自闭症患者行为表象之下的代偿策略:一项定性研究
Lancet Psychiatry. 2019 Sep;6(9):766-777. doi: 10.1016/S2215-0366(19)30224-X. Epub 2019 Jul 23.
6
Understanding the Reasons, Contexts and Costs of Camouflaging for Autistic Adults.理解自闭症成年人掩饰行为的原因、情境和代价。
J Autism Dev Disord. 2019 May;49(5):1899-1911. doi: 10.1007/s10803-018-03878-x.
7
Which terms should be used to describe autism? Perspectives from the UK autism community.应该用哪些术语来描述自闭症?来自英国自闭症群体的观点。
Autism. 2016 May;20(4):442-62. doi: 10.1177/1362361315588200. Epub 2015 Jul 1.
8
Person-first and identity-first language: Developing psychologists' cultural competence using disability language.以人为本和身份优先的语言:使用残疾语言发展心理学家的文化能力。
Am Psychol. 2015 Apr;70(3):255-64. doi: 10.1037/a0038636. Epub 2015 Feb 2.
9
Autism spectrum disorders (ASD) in Africa: a perspective.非洲的自闭症谱系障碍(ASD):一种观点。
Afr J Psychiatry (Johannesbg). 2011 Jul;14(3):208-10. doi: 10.4314/ajpsy.v14i3.3.

发展中国家背景下的自闭症范式:津巴布韦一项研究的结果与启示

Autism paradigms in a developing country setting: Results and implications of a Zimbabwean study.

作者信息

Mpofu Jabulani, Sefotho Maximus M

机构信息

Department of Educational Psychology, Faculty of Education, University of Johannesburg, Johannesburg, South Africa.

出版信息

Afr J Disabil. 2025 Jul 18;14:1638. doi: 10.4102/ajod.v14i0.1638. eCollection 2025.

DOI:10.4102/ajod.v14i0.1638
PMID:40799406
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12339774/
Abstract

BACKGROUND

Autism spectrum disorders (ASD) are an evolving concept in the neurodiversity community. There is a continuum of views ranging from biological to social models, of which the medical model views ASD as pathological rather than atypical. How people live with their diversity attributes may depend on how they understand their own diversity attribute.

OBJECTIVES

This study explored self-perceptions of young people with mild-to-moderate ASD within their cultural context.

METHOD

Participants included an equal number of males and females with mild-to-moderate ASD (five each). They participated in two focus group discussions on self-perceptions of life situations in young people with ASD and whether they are considered as neurodiversity or pathology paradigms. Data analysis was done using the thematic content analysis approach.

RESULTS

Participants viewed ASD as: (1) a human neurological variation, (2) were not disordered, (3) had sense of friendship and belonging, and (4) had natural and normal social emotional development.

CONCLUSION

Young people with ASD perceive ASD from a neurodiversity approach. A neurodiversity approach to ASD is primarily a social justice movement aiming to end what proponents see as the default pathologisation of neurodivergence and promoting the acceptance and accommodation of human neurodiversity.

CONTRIBUTION

This study enhances understanding of self-perceptions among young people with ASD in Zimbabwe, revealing challenges and strengths unique to their experiences. It may inform educators and policymakers, promoting inclusive practices and tailored interventions, ultimately fostering empowerment, acceptance, and improved quality of life for young people within this community.

摘要

背景

自闭症谱系障碍(ASD)在神经多样性群体中是一个不断演变的概念。从生物学模型到社会模型存在一系列观点,其中医学模型将ASD视为病理性而非非典型性的。人们如何与自身的多样性特征共处可能取决于他们如何理解自己的多样性特征。

目的

本研究在文化背景下探索了轻度至中度ASD青少年的自我认知。

方法

参与者包括数量相等的轻度至中度ASD男性和女性(各5名)。他们参加了两次焦点小组讨论,内容涉及ASD青少年对生活状况的自我认知,以及他们被视为神经多样性还是病理学范式。数据分析采用主题内容分析法。

结果

参与者将ASD视为:(1)一种人类神经变异,(2)没有紊乱,(3)有友谊和归属感,(4)有自然且正常的社会情感发展。

结论

ASD青少年从神经多样性的角度看待ASD。ASD的神经多样性方法主要是一场社会正义运动,旨在结束支持者所认为的神经差异的默认病理化,并促进对人类神经多样性的接受和包容。

贡献

本研究增进了对津巴布韦ASD青少年自我认知的理解,揭示了他们经历中独特的挑战和优势。它可能为教育工作者和政策制定者提供信息,促进包容性实践和量身定制的干预措施,最终增强该群体中青少年的权能、促进接受并改善他们的生活质量。