Mpofu Jabulani, Sefotho Maximus M
Department of Educational Psychology, Faculty of Education, University of Johannesburg, Johannesburg, South Africa.
Afr J Disabil. 2025 Jul 18;14:1638. doi: 10.4102/ajod.v14i0.1638. eCollection 2025.
Autism spectrum disorders (ASD) are an evolving concept in the neurodiversity community. There is a continuum of views ranging from biological to social models, of which the medical model views ASD as pathological rather than atypical. How people live with their diversity attributes may depend on how they understand their own diversity attribute.
This study explored self-perceptions of young people with mild-to-moderate ASD within their cultural context.
Participants included an equal number of males and females with mild-to-moderate ASD (five each). They participated in two focus group discussions on self-perceptions of life situations in young people with ASD and whether they are considered as neurodiversity or pathology paradigms. Data analysis was done using the thematic content analysis approach.
Participants viewed ASD as: (1) a human neurological variation, (2) were not disordered, (3) had sense of friendship and belonging, and (4) had natural and normal social emotional development.
Young people with ASD perceive ASD from a neurodiversity approach. A neurodiversity approach to ASD is primarily a social justice movement aiming to end what proponents see as the default pathologisation of neurodivergence and promoting the acceptance and accommodation of human neurodiversity.
This study enhances understanding of self-perceptions among young people with ASD in Zimbabwe, revealing challenges and strengths unique to their experiences. It may inform educators and policymakers, promoting inclusive practices and tailored interventions, ultimately fostering empowerment, acceptance, and improved quality of life for young people within this community.
自闭症谱系障碍(ASD)在神经多样性群体中是一个不断演变的概念。从生物学模型到社会模型存在一系列观点,其中医学模型将ASD视为病理性而非非典型性的。人们如何与自身的多样性特征共处可能取决于他们如何理解自己的多样性特征。
本研究在文化背景下探索了轻度至中度ASD青少年的自我认知。
参与者包括数量相等的轻度至中度ASD男性和女性(各5名)。他们参加了两次焦点小组讨论,内容涉及ASD青少年对生活状况的自我认知,以及他们被视为神经多样性还是病理学范式。数据分析采用主题内容分析法。
参与者将ASD视为:(1)一种人类神经变异,(2)没有紊乱,(3)有友谊和归属感,(4)有自然且正常的社会情感发展。
ASD青少年从神经多样性的角度看待ASD。ASD的神经多样性方法主要是一场社会正义运动,旨在结束支持者所认为的神经差异的默认病理化,并促进对人类神经多样性的接受和包容。
本研究增进了对津巴布韦ASD青少年自我认知的理解,揭示了他们经历中独特的挑战和优势。它可能为教育工作者和政策制定者提供信息,促进包容性实践和量身定制的干预措施,最终增强该群体中青少年的权能、促进接受并改善他们的生活质量。