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肌萎缩侧索硬化症患者居家过渡性护理:一项范围综述

Transitional Care for Patients with Amyotrophic Lateral Sclerosis to the Home: A Scoping Review.

作者信息

Sousa Evelyn Silva de, Silva Larissa Arielly Cunha da, Paiva Renilly de Melo, Soares Katiane Domingos, Azevedo Isabelle Campos de, Santos Viviane Euzébia Pereira

机构信息

Universidade Federal do Rio Grande do Norte. Natal, Rio Grande do Norte, Brazil.

出版信息

Rev Bras Enferm. 2025 Aug 8;78(3):e20240297. doi: 10.1590/0034-7167-2024-0297. eCollection 2025.

Abstract

OBJECTIVES

to map the care required for the transition of patients with Amyotrophic Lateral Sclerosis to the home environment.

METHODS

a scoping review was conducted following the JBI guidelines. The search for publications on the topic was carried out in databases such as PubMed and Web of Science between February and May 2023. Full-text studies that addressed the research objective were included. Letters to the editor, editorials, and opinion articles were excluded.

RESULTS

the final sample consisted of seven articles. Regarding care, the studies highlighted assistance with basic life needs, care planning, protocol development, the use of telehealth, and communication between healthcare services.

CONCLUSIONS

the care required for the transition of individuals with Amyotrophic Lateral Sclerosis to the home environment ranges from assistance with basic human needs to the coordination with other healthcare services. Altogether, these actions contribute to a safe and effective transitional process.

摘要

目的

明确肌萎缩侧索硬化症患者向家庭环境过渡所需的护理。

方法

按照循证卫生保健国际协作中心(JBI)指南进行了一项范围综述。2023年2月至5月期间,在PubMed和Web of Science等数据库中搜索有关该主题的出版物。纳入了涉及研究目标的全文研究。排除了给编辑的信、社论和观点文章。

结果

最终样本包括七篇文章。关于护理,研究强调了基本生活需求方面的协助、护理计划、方案制定、远程医疗的使用以及医疗服务之间的沟通。

结论

肌萎缩侧索硬化症患者向家庭环境过渡所需的护理范围从基本人类需求的协助到与其他医疗服务的协调。总之,这些行动有助于实现安全有效的过渡过程。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/80b1/12334203/b201c354deed/0034-7167-reben-78-03-e20240297-gf01.jpg

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