Ge Shaoqing, Trainum Katie, Pei Yaolin, Chee Wonshik, Song Yuting, Xie Bo
School of Nursing, The University of Texas at Austin, Austin, Texas, USA.
School of Nursing, Qingdao University, Qingdao, China.
Alzheimers Dement. 2025 Aug;21(8):e70525. doi: 10.1002/alz.70525.
Caregivers of individuals with dementia often face the dual challenge of managing dementia alongside sensory impairments (hearing and/or vision loss). Despite the significant burden, this issue remains underexplored, with existing research largely overlooking the impact of sensory impairments on caregivers' experiences. This systematic review examines the challenges and needs of caregivers managing both conditions. A comprehensive literature search across three databases identified 12 studies published before May 2024 in five countries. The review revealed that caregivers face increased challenges when managing both dementia and sensory impairments. Unmet needs, particularly in accessing tailored support and assistive technologies, were prevalent. Multidisciplinary care and interventions are crucial to address both cognitive and sensory needs. To improve the quality of life for caregivers and sensory impaired dementia patients, comprehensive support systems, enhanced caregiver education, and better access to affordable assistive technologies are essential. Addressing these disparities is critical for providing effective care. HIGHLIGHTS: This review focuses on informal caregiving for people with dementia and sensory loss. Caregivers face increased challenges due to managing both dementia and sensory impairments. There are additive implications of caring for people with dual impairments. Further research is needed on interventions to support this caregiver population.
痴呆症患者的照料者常常面临着同时应对痴呆症和感官障碍（听力和/或视力丧失）的双重挑战。尽管负担沉重，但这个问题仍未得到充分研究，现有研究大多忽视了感官障碍对照料者体验的影响。本系统综述考察了同时应对这两种情况的照料者所面临的挑战和需求。通过对三个数据库进行全面的文献检索，共识别出2024年5月之前在五个国家发表的12项研究。该综述显示，照料者在同时应对痴呆症和感官障碍时面临着更多挑战。未得到满足的需求普遍存在，尤其是在获得量身定制的支持和辅助技术方面。多学科护理和干预对于满足认知和感官需求至关重要。为了提高照料者和有感官障碍的痴呆症患者的生活质量，全面的支持系统、加强照料者教育以及更好地获得负担得起的辅助技术至关重要。解决这些差异对于提供有效的护理至关重要。要点：本综述关注痴呆症和感官丧失患者的非正式照料。由于同时应对痴呆症和感官障碍，照料者面临更多挑战。照料双重障碍患者存在叠加影响。需要进一步研究支持这一照料者群体的干预措施。
