Ruseckaite Rasa, Mudunna Chethana, Ackerman Ilana, Gabbe Belinda, Ahern Susannah
School of Public Health and Preventive Medicine, Monash University, Melbourne, VIC, Australia.
Health Serv Insights. 2025 Aug 22;18:11786329251347343. doi: 10.1177/11786329251347343. eCollection 2025.
Clinical quality registries (CQRs) systematically monitor the quality of healthcare by routinely collecting and reporting health-related information. The collection of patient reported measures (PRMs) by CQRs provides a personal perspective on the expectations and impacts of treatment. Reporting of CQR-collected PRMs for quality improvement (QI) is highly variable.
To develop a best practice guide (BPG) for CQRs, clinicians and health services to support high-quality and transparent reporting of PRM data for QI purposes.
The project comprised four stages. The first sought to describe how PRMs were reported for QI purposes in Australia and internationally. The second stage included seven focus groups with 20 Australian CQRs to identify existing practices, issues and impacts regarding PRMs reporting. During stage 3, findings from the literature and focus groups were used to draft a preliminary BPG. Finally, expert workshops involving PRMs experts, consumers, clinicians and representatives from CQRs were convened to refine a preliminary BPG.
We identified 61 international and 45 Australian CQRs that reported PRMs for QI purposes. PRMs were used for shared decision-making in clinical encounters, for developing clinical decision aids, to revise treatment guidelines and to monitor complications after hospital discharge. Several themes emerged from the focus groups. These included: purpose and context, funding and resource requirements, consumer involvement, clinician training, instrument selection and administration, outlier identification, visualisation and interpretation of the data. A preliminary BPG was refined during the workshop discussions.
An increasing number of CQRs use PRMs to enhance QI reporting, however there are no published guidelines currently to support this. Through identifying existing practices, methods and techniques that CQRs use to report PRMs, we developed a practical guideline to support CQRs and standardise their PRMs reporting for QI purposes, with the overarching goal of optimising the value of PRM data within CQRs.
临床质量登记处（CQRs）通过定期收集和报告与健康相关的信息，系统地监测医疗保健质量。CQRs收集患者报告指标（PRMs）能提供关于治疗期望和影响的个人观点。为了质量改进（QI）而报告CQRs收集的PRMs情况差异很大。
为CQRs、临床医生和卫生服务机构制定一份最佳实践指南（BPG），以支持为QI目的高质量、透明地报告PRM数据。
该项目包括四个阶段。第一阶段旨在描述澳大利亚和国际上为QI目的报告PRMs的方式。第二阶段包括与20个澳大利亚CQRs进行的7次焦点小组讨论，以确定PRMs报告的现有做法、问题和影响。在第三阶段，利用文献和焦点小组的研究结果起草了一份初步的BPG。最后，召开了由PRMs专家、消费者、临床医生和CQRs代表参加的专家研讨会，以完善初步的BPG。
我们确定了61个国际CQRs和45个澳大利亚CQRs为QI目的报告PRMs。PRMs被用于临床会诊中的共同决策、开发临床决策辅助工具、修订治疗指南以及监测出院后的并发症。焦点小组讨论中出现了几个主题。这些主题包括：目的和背景、资金和资源需求、消费者参与、临床医生培训、工具选择和管理、异常值识别、数据可视化和解释。在研讨会讨论期间对初步的BPG进行了完善。
越来越多的CQRs使用PRMs来加强QI报告，然而目前尚无已发表的指南来支持这一点。通过确定CQRs用于报告PRMs的现有做法、方法和技术，我们制定了一份实用指南，以支持CQRs并使其为QI目的的PRMs报告标准化，总体目标是优化CQRs内PRM数据的价值。
