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巴西痴呆症患者无薪照料者的Pearlin掌握量表验证:一项方法学研究。

Validation of the Pearlin Mastery Scale for unpaid caregivers of people living with dementia in Brazil: a methodological study.

作者信息

Barbosa Gustavo Carrijo, Monteiro Diana Quirino, Ottaviani Ana Carolina, Campos Camila Rafael Ferreira, Alves Ludmyla Caroline de Souza, Martins Gabriela, Corrêa Larissa, Rocha Luana Aparecida da, Pavarini Sofia Cristina Iost, Barham Elizabeth Joan, Orlandi Fabiana de Souza, Cruz Keila Cristianne Trindade da, Oliveira Deborah, Gratão Aline Cristina Martins

机构信息

Physiotherapist. Programa de Pós-Graduação em Enfermagem, Universidade Federal de São Carlos (UFSCar), São Carlos (SP), Brazil.

Gerontologist. Programa de Pós-Graduação em Gerontologia, Universidade Católica de Brasília (UCB), Brasília (DF), Brazil.

出版信息

Sao Paulo Med J. 2025 Aug 25;143(5):e2024446. doi: 10.1590/1516-3180.2024.0446.R1.13062025. eCollection 2025.

Abstract

BACKGROUND

Sense of mastery has been described in the literature as a psychological resource potentially associated with reduced caregiver burden. However, there are no validated instruments in the Brazilian context that allow the evaluation of the sense of mastery as a possible outcome of interventions aimed at supporting unpaid caregivers of people with dementia.

OBJECTIVE

To validate the construct of the Brazilian version of the Pearlin Mastery Scale among unpaid caregivers of people living with dementia.

DESIGN AND SETTING

This methodological study was conducted with 100 unpaid caregivers of people living with dementia, cared for at home, and who resided in Brazil.

METHODS

Evidence of validity was tested based on internal structure, reliability, and correlations with theoretically related constructs. Sociodemographic data on sense of mastery, burden, depressive symptoms, anxiety, and quality of life were collected.

RESULTS

Difficulties involving burden (80%), depressive symptoms (70%), anxiety (65%), and low quality of life (62%) were reported. Satisfactory measures of adjustment were found in the factor analysis; however, by removing two inversely scored items, these measures improved, resulting in a Cronbach's alpha of 0.75. Significant correlations were found between sense of mastery and burden scores (ρ = -.56), symptoms of depression (ρ = -.57), anxiety (ρ = -.57), and quality of life (ρ = .64).

CONCLUSION

Evidence of validity was found for the Pearlin Mastery Scale Brazilian version based on the internal structure, reliability, and correlations with theoretically related constructs, indicating that it is a suitable instrument for use in Brazil.

摘要

背景

在文献中,掌控感被描述为一种心理资源,可能与减轻照料者负担有关。然而,在巴西的背景下,没有经过验证的工具可以评估掌控感,作为旨在支持痴呆症患者无薪照料者的干预措施的可能结果。

目的

在痴呆症患者的无薪照料者中验证巴西版佩林掌控量表的结构。

设计与背景

本方法学研究对100名居住在巴西、在家中照料痴呆症患者的无薪照料者进行。

方法

基于内部结构、信度以及与理论相关结构的相关性来测试效度证据。收集了关于掌控感、负担、抑郁症状、焦虑和生活质量的社会人口学数据。

结果

报告了涉及负担(80%)、抑郁症状(70%)、焦虑(65%)和低生活质量(62%)的困难。在因子分析中发现了令人满意的调整指标;然而,通过去除两个反向计分的项目,这些指标得到了改善,导致克朗巴哈系数为0.75。发现掌控感与负担得分(ρ = -.56)、抑郁症状(ρ = -.57)、焦虑(ρ = -.57)和生活质量(ρ = .64)之间存在显著相关性。

结论

基于内部结构、信度以及与理论相关结构的相关性,发现了巴西版佩林掌控量表的效度证据,表明它是一种适用于巴西的工具。

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