Cheung Verna, Powis Melanie, Claudio Jaime O, Lindberg Greg, Arruda Andrea, Emanuele Cristina, Nye Taylor, Davidson Marta B, Bankar Aniket, Sibai Hassan, Gupta Vikas, Maze Dawn
Princess Margaret Cancer Centre; Lawrence S. Bloomberg Faculty of Nursing, University of Toronto.
Princess Margaret Cancer Centre.
Can Oncol Nurs J. 2025 Jan 1;35(1):53-70. doi: 10.5737/2368807635153. eCollection 2025 Winter.
Myeloproliferative neoplasms (MPNs) are a group of rare clonal disorders of hematopoietic progenitor cells associated with disease-related symptoms, thrombotic events, and risk of transformation to acute myeloid leukemia (Tefferi, 2021). The relative rarity and complexity of care led to the establishment of the MPN program at the Princess Margaret (PM) Cancer Centre. The MPN program utilizes a shared-care model wherein partnering with local hematologists (shared-care partners) ensures that patients have access to an MPN specialist while continuing to receive care close to home (Cheung et al., 2021). The clinical nurse specialist (CNS) role was implemented in late 2016 to support not only the shared-care model, but also to triage new patient referrals, and support consultation and follow-up. Although the CNS roles have been part of the healthcare system since the 1940s, the role and its impact remain unclear at times to the inter-disciplinary team. This paper will describe the process and results from evaluating the CNS role's impact in the MPN program using a multimethod approach. This is part one of two papers; herein the quantitative findings are presented, and part two will discuss the qualitative findings.
骨髓增殖性肿瘤(MPNs)是一组罕见的造血祖细胞克隆性疾病,与疾病相关症状、血栓形成事件以及转化为急性髓系白血病的风险相关(特费里,2021年)。由于护理的相对罕见性和复杂性,玛格丽特公主(PM)癌症中心设立了MPN项目。MPN项目采用共享护理模式,与当地血液科医生(共享护理伙伴)合作,确保患者在离家较近的地方继续接受护理的同时,能够获得MPN专科医生的服务(张等人,2021年)。临床护士专家(CNS)的角色于2016年末设立,不仅为共享护理模式提供支持,还对新患者转诊进行分类,并支持会诊和随访。尽管自20世纪40年代以来,CNS的角色就已成为医疗保健系统的一部分,但跨学科团队有时仍不清楚其角色及其影响。本文将描述使用多方法评估CNS角色在MPN项目中的影响的过程和结果。这是两篇论文中的第一篇;本文呈现定量研究结果,第二篇将讨论定性研究结果。