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生前葬礼对绝症患者心理健康和终结感影响的经验——病例报告

The experiences on how living funerals impact the psychological well-being and sense of closure for terminally ill patients -Case report.

作者信息

Sim Shannon, Sim Jonathan

机构信息

HCA Hospice Limited, Singapore, Singapore.

出版信息

Palliat Care Soc Pract. 2025 Aug 26;19:26323524251364277. doi: 10.1177/26323524251364277. eCollection 2025.

Abstract

Terminally ill individuals often grapple with various psychological challenges as they face their mortality. While traditional funerals provide solace to the bereaved, living funerals have emerged as a distinct opportunity for both the patient and their loved ones to socially participate in the farewell. This case report highlights the impact on the psychological well-being and sense of closure for Ms. T, a Singaporean patient with terminal ovarian cancer, who hosted her own living funeral. Ms. T was receiving home hospice care. Her symptoms (including pain, discomfort, insomnia, nausea, fatigue, and shortness of breath) have limited her from social connection; something that she values and emphasized prior to illness. After discussing with Ms. T about her values and end-of-life care preferences, a living funeral was arranged, where she invited friends and family to attend at her home to connect with her and to create memories. At the session, Ms. T became more energetic and was described as 'the life of the party'. The social experience of holding a Living Funeral provided motivation and sustainability to her overall well-being. Moreover, there was an increase in her social circle contacting her to keep in touch. The living funeral is aligned with concepts related to life review. The patient, as host of the living funeral, was able to witness the impact of their life on others, reinforcing her ego integrity and psychological resilience at her final stage of life. The patient expressed a sense of 'closure and completeness', having 'reconnected with friends and family' by 'clarifying their relationships' and 'expressing love for each other'. This intervention also highlighted the impact of addressing social connections and relationships between patients and their loved ones. Further examination could highlight the benefits, challenges, and underlying constructs of the Living Funeral.

摘要

身患绝症的人在面对死亡时常常要应对各种心理挑战。虽然传统葬礼能给逝者家属带来慰藉,但生前葬礼已成为患者及其亲人在社交层面参与告别的独特契机。本病例报告着重阐述了一位患有晚期卵巢癌的新加坡患者T女士举办自己的生前葬礼后,其心理健康和终结感所受到的影响。T女士正在接受居家临终关怀护理。她的症状(包括疼痛、不适、失眠、恶心、疲劳和呼吸急促)使她难以进行社交,而社交是她患病前重视并强调的事情。在与T女士讨论了她的价值观和临终护理偏好后,一场生前葬礼被安排妥当,她邀请朋友和家人到家中与她相聚并留下回忆。在葬礼上,T女士变得更有活力,被形容为“派对的灵魂人物”。举办生前葬礼的社交体验为她的整体幸福感提供了动力和支撑。此外,与她保持联系的社交圈子也扩大了。生前葬礼与生命回顾的概念相契合。作为生前葬礼的主人,患者能够见证自己的生命对他人产生的影响,在生命的最后阶段强化了她的自我完整性和心理韧性。患者表示有了一种“终结感和圆满感”,通过“厘清关系”和“表达彼此的爱”与“朋友和家人重新建立了联系”。这种干预措施还凸显了关注患者及其亲人之间社交联系和关系的影响。进一步的研究可以突出生前葬礼的益处、挑战及潜在构成要素。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/68ed/12381447/6d252ff11984/10.1177_26323524251364277-fig1.jpg

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