Kabanda Siti M, Cengiz Nezerith, Rajaratnam Kanshukan, Watson Bruce W, Brown Qunita, Esterhuizen Tonya M, Moodley Keymanthri
Centre for Medical Ethics and Law, Faculty of Medicine and Health Sciences, Stellenbosch University, Cape Town, South Africa.
School for Data Science and Computational Thinking, Stellenbosch University, Stellenbosch, South Africa.
S Afr J Sci. 2023 May-Jun;119(5-6). doi: 10.17159/sajs.2023/15129. Epub 2023 May 30.
The data ecosystem is complex and involves multiple stakeholders. Researchers and scientists engaging in data-intensive research collect, analyse, store, manage and share large volumes of data. Consequently, capturing researchers' and scientists' views from multidisciplinary fields on data use, sharing and governance adds an important African perspective to emerging debates. We conducted a descriptive cross-sectional survey and received 160 responses from researchers and scientists representing 43 sub-Saharan African countries. Whilst most respondents were satisfied with institutional data storage processes, 40% indicated that their organisations or institutions did not have a formally established process for storing data beyond the life cycle of the project. Willingness to share data was generally high, but increased when data privacy was ensured. Robust governance frameworks increased the willingness to share, as did the regulation of access to data on shared platforms. Incentivising data sharing remains controversial. Respondents were satisfied with exchanging their data for co-authorship on publications (89.4%) and collaboration on projects (77.6%). However, respondents were split almost equally in terms of sharing their data for commercial gain. Regarding the process of managing data, 40.6% indicated that their organisations do not provide training on best practices for data management. This could be related to a lack of resources, chronic institutional under-investment, and suboptimal research training and mentorship in sub-Saharan Africa. The sustainability of data sharing may require ethical incentive structures to further encourage researchers and scientists. Tangible infrastructure to facilitate such sharing is a prerequisite. Capacity development in data governance for researchers and scientists is sorely needed.
Data sharing is necessary to advance science, yet there are many constraints. In this study, we explored factors that promote a willingness to share, as well as constraining factors. Seeking potential solutions to improve data sharing is a scientific and ethical imperative. The standardisation of basic data sharing and data transfer agreements, and the development of a Data Access Committee will strengthen data governance and facilitate responsible data sharing in sub-Saharan Africa. Funders, institutions, researchers and scientists ought to jointly contribute to fair and equitable data use and sharing during and beyond the life cycle of research projects.
数据生态系统复杂,涉及多个利益相关者。从事数据密集型研究的研究人员和科学家收集、分析、存储、管理和共享大量数据。因此,了解多学科领域研究人员和科学家对数据使用、共享和治理的看法,为正在兴起的辩论增添了重要的非洲视角。我们开展了一项描述性横断面调查,收到了来自代表撒哈拉以南非洲43个国家的研究人员和科学家的160份回复。虽然大多数受访者对机构数据存储流程感到满意,但40%的受访者表示,他们所在的组织或机构没有正式确立项目生命周期之外的数据存储流程。共享数据的意愿总体较高,但在确保数据隐私时意愿会增强。健全的治理框架会提高共享意愿,对共享平台上数据访问的规范也有同样效果。激励数据共享仍存在争议。受访者对以在出版物上共同署名(89.4%)和参与项目合作(77. .6%)来交换数据感到满意。然而,对于为商业利益而共享数据,受访者的意见几乎平分秋色。关于数据管理流程,40.6%的受访者表示他们所在的组织不提供数据管理最佳实践方面的培训。这可能与资源匮乏、机构长期投资不足以及撒哈拉以南非洲研究培训和指导欠佳有关。数据共享的可持续性可能需要道德激励机制来进一步鼓励研究人员和科学家。促进此类共享的切实基础设施是先决条件。研究人员和科学家在数据治理方面的能力建设迫切需要。
数据共享对推动科学发展很有必要,但存在诸多限制。在本研究中,我们探讨了促进共享意愿的因素以及制约因素。寻求改善数据共享的潜在解决方案是一项科学和道德上的紧迫任务。基本数据共享和数据传输协议的标准化以及数据访问委员会的设立,将加强数据治理并促进撒哈拉以南非洲负责任的数据共享。资助者、机构、研究人员和科学家应共同努力,在研究项目的生命周期内及之后实现公平公正的数据使用和共享。