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菲律宾抽动秽语综合征治疗中的挑战。

Challenges in the treatment of Tourette syndrome in the Philippines.

作者信息

Cataniag Paulo, Ong Jed Noel, Diesta Cid Czarina, Pringsheim Tamara

机构信息

Section of Movement Disorders, Department of Neurosciences, MakatiMed Institute of Neurological, Neurosurgical and Behavioral Sciences (M.I.N.D.S.), Makati Medical Center, Makati City, Metro Manila, Philippines.

Department of Neurosciences, Baguio General Hospital and Medical Center, Benguet, Baguio City, Philippines.

出版信息

J Neural Transm (Vienna). 2025 Sep 5. doi: 10.1007/s00702-025-02959-3.

DOI:10.1007/s00702-025-02959-3
PMID:40911210
Abstract

Tourette Syndrome (TS), the most recognized primary tic disorder, affects about 0.9% of patients in movement disorders clinics in the Philippines. Its management faces significant challenges, including a shortage of movement disorder specialists. Limited access to care is further complicated by the lack of specialized behavioral therapy services and relatively high costs of pharmacological treatments. Many patients turn to online therapies, which may not be suitable for everyone. Additional difficulties arise from inadequate training for healthcare professionals and the absence of support groups, hindering effective management. This opinion paper highlights the critical need for increased funding, enhanced training programs, additional research, and the creation of support networks to improve the quality of care for TS patients in the Philippines.

摘要

抽动秽语综合征(TS)是最广为人知的原发性抽动障碍,在菲律宾的运动障碍诊所中,约0.9%的患者受其影响。其管理面临重大挑战,包括运动障碍专家短缺。缺乏专门的行为治疗服务以及药物治疗成本相对较高,使得获得医疗服务的机会有限这一情况更加复杂。许多患者转向在线治疗,但这可能并不适合所有人。医疗专业人员培训不足以及缺乏支持小组也带来了额外困难,阻碍了有效管理。这篇观点文章强调,迫切需要增加资金、加强培训项目、开展更多研究并建立支持网络,以提高菲律宾抽动秽语综合征患者的护理质量。

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本文引用的文献

1
Tic Disorders Care Gaps in Spanish-Speaking Latin America.西班牙语拉丁美洲抽动障碍的护理差距。
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Systematic review-understanding the barriers and facilitators experienced by healthcare professionals in providing care for tics: a mixed methods systematic review of clinical knowledge, attitudes, and practices.系统评价——理解医疗保健专业人员在提供 tic 护理方面所经历的障碍和促进因素:对临床知识、态度和实践的混合方法系统评价。
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Healthcare utilisation and costs associated with poor access to diagnosis and treatment for children and young people with tic disorders.
与儿童和青少年抽动障碍诊断和治疗机会差相关的医疗保健利用和费用。
BMJ Ment Health. 2024 Nov 7;27(1):e301241. doi: 10.1136/bmjment-2024-301241.
4
Incidence trend and epidemiology of tic disorders among youths and adults in Korea from 2003 to 2020: A national population-based study.2003 年至 2020 年韩国青少年和成年人抽动障碍的发病率趋势和流行病学:一项全国基于人群的研究。
Psychiatry Res. 2024 Jan;331:115634. doi: 10.1016/j.psychres.2023.115634. Epub 2023 Nov 26.
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Tourette syndrome: clinical features, pathophysiology, and treatment.妥瑞氏症候群:临床特征、病理生理学和治疗。
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Eur Child Adolesc Psychiatry. 2022 Mar;31(3):425-441. doi: 10.1007/s00787-021-01899-z. Epub 2021 Nov 10.
10
Efficacy and Safety of Fixed-Dose Deutetrabenazine in Children and Adolescents for Tics Associated With Tourette Syndrome: A Randomized Clinical Trial.固定剂量氘丁苯那嗪治疗抽动秽语综合征相关抽动的疗效和安全性:一项随机临床试验。
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