Trettin Bettina, Hyltoft Nina, Agerskov Hanne, Nielsen Charlotte, Frandsen Christina Egmose
Department of Dermatology and Allergy Centre, Odense University Hospital, J.B. Winsløws Vej 2C, Odense 5000, Denmark.
Centre for Innovative Medical Technology, Odense University Hospital, Kløvervænget 19, Odense 5000, Denmark.
Health Care Transit. 2025 Aug 27;3:100118. doi: 10.1016/j.hctj.2025.100118. eCollection 2025.
Approximately 10-30 % of the youth (aged 15-24) have a diagnosed chronic medical condition. Effective transition from pediatric to adult care is thus essential for disease management. The growing interest in the transition of young people with chronic medical conditions has led to numerous international studies revealing diverse and often inadequate transition practices. Thus, the aim was to gain a new understanding and deeper insight into youths´ experiences of their transition from paediatric to adult care.
Utilizing the meta-ethnographic method by Noblit and Hare, a structured literature searchwas conducted in CINAHL and PubMed.
Ten articles were included. The meta-ethnography found that youth - despite their chronic medical condition - define themselves as primarily young and secondarily chronically ill. Furthermore, youth transitioning to adult care are being the Captain of Their Own Life and hence stand alone with the responsibility of managing their illness, lacking the competence to master it fully, and facing an unorganized healthcare system that does not adequately support their needs. Thus, youth find they are Navigating in the Dark.
Adopting a rigorously systematic approach to conducting a meta-ethnography provides new and valuable knowledge into the transition process from pediatric to adult care. Youth with chronic medical conditions encounter multiple challenges in their transition from pediatric to adult care, which has not systematically been integrated into patient care pathways in clinical practice. This review provides a new understanding of youths' transition experiences, on which further research regarding the organization of effective and evidence-based process can be based.
约10%-30%的青少年（15-24岁）被诊断患有慢性疾病。因此，从儿科护理有效过渡到成人护理对于疾病管理至关重要。对患有慢性疾病的年轻人过渡问题的兴趣日益浓厚，这引发了众多国际研究，揭示了多样且往往不充分的过渡实践。因此，本研究旨在对青少年从儿科护理过渡到成人护理的经历获得新的理解并进行更深入的洞察。
采用诺布利特和黑尔的元民族志方法，在护理学与健康领域数据库（CINAHL）和医学期刊数据库（PubMed）中进行了结构化文献检索。
纳入了10篇文章。元民族志研究发现，青少年——尽管患有慢性疾病——主要将自己定义为年轻人，其次才是慢性病患者。此外，向成人护理过渡的青少年要成为自己生活的主宰，因此独自承担管理疾病的责任，缺乏完全掌控疾病的能力，并且面临一个无组织的医疗保健系统，该系统不能充分满足他们的需求。因此，青少年发现自己在黑暗中摸索。
采用严格系统的方法进行元民族志研究，为从儿科护理过渡到成人护理的过程提供了新的有价值的知识。患有慢性疾病的青少年在从儿科护理过渡到成人护理的过程中面临多重挑战，而这些挑战在临床实践中尚未系统地纳入患者护理路径。本综述对青少年的过渡经历提供了新的理解，可为进一步开展关于有效且基于证据的流程组织的研究提供依据。
