Robinson-Barella Anna, Wayoe Trinette, Deakin Rosabella Louise, Richardson Charlotte Lucy
School of Pharmacy, Newcastle University, Newcastle Upon Tyne, UK.
Population Health Sciences Institute, Newcastle University, Newcastle Upon Tyne, UK.
Health Expect. 2025 Oct;28(5):e70426. doi: 10.1111/hex.70426.
There remains limited research exploring the experiences of informal carers from ethnically minoritised groups, particularly to illustrate perceptions of caring roles and challenges they may face to address unmet needs. While barriers such as language, cultural expectations and discrimination are acknowledged in wider literature, little is known about how these influence caregiving experiences or access to services in practice. This work seeks to better describe the barriers and facilitators impacting carers from ethnically minoritised groups, as well as illustrate possible influences of culture and carer identity affecting this under-researched population.
Throughout June-July 2024, semi-structured interviews were conducted with informal caregivers from ethnically minoritised groups (including: Pakistani, Black African, Indian, Arab, Chinese and Yemeni communities). Interviews were audio-recorded and transcribed verbatim. Reflexive thematic analysis was used to develop themes. Ethical approval was obtained from Newcastle University Research Ethics Committee, ref: 2275/46476).
Fourteen carers of a variety of ages and ethnicities participated. Three overarching themes were developed from the data that centred on the following: Defining the role of a carer: people's journeys to becoming carers and links to roles as interpreters. Advocating for inclusive care: to receive accessible and understandable information. The impact of a person's wider community and culture upon their caring responsibility: culture and health are interlinked, and this influences the support that carers may need.
Carers from ethnically minoritised groups have faced challenges with linguistic barriers and the paucity of healthcare services that are sensitive to cultural differences. Much of the work to date has focused on 'formal' caregivers and paid roles, as well as the experiences of people from ethnic majority groups. This study contributes unique perspectives to the current knowledge base and raises novel, learning points specific to supporting carers from ethnically minoritised groups. Future research could extend the conclusions from this work to specifically explore possible ethnic and cultural nuances in caring experiences.
An informal carer (David Black) was involved in the design of the study and its materials, and carers from various ethnic minority groups were involved. The NIHR INVOLVE guidelines and recommendations for carer involvement in research were followed.
Not applicable.
目前，针对少数族裔群体中非正式护理人员经历的研究仍然有限，特别是关于他们对护理角色的认知以及在满足未得到满足的需求方面可能面临的挑战。虽然在更广泛的文献中承认了语言、文化期望和歧视等障碍，但对于这些因素在实际中如何影响护理经历或服务获取情况却知之甚少。这项工作旨在更好地描述影响少数族裔群体护理人员的障碍和促进因素，并说明文化和护理人员身份可能对这一研究不足的人群产生的影响。
在2024年6月至7月期间，对少数族裔群体的非正式护理人员（包括：巴基斯坦、非洲黑人、印度、阿拉伯、中国和也门社区）进行了半结构化访谈。访谈进行了录音，并逐字转录。采用反思性主题分析来提炼主题。获得了纽卡斯尔大学研究伦理委员会的伦理批准，编号：2275/46476）。
14名不同年龄和种族的护理人员参与了研究。从数据中提炼出了三个总体主题，围绕以下方面：界定护理人员的角色：人们成为护理人员的历程以及与口译员角色的联系。倡导包容性护理：以获取可及且易懂的信息。个人更广泛的社区和文化对其护理责任的影响：文化与健康相互关联，这影响着护理人员可能需要的支持。
少数族裔群体的护理人员面临语言障碍以及缺乏对文化差异敏感的医疗服务等挑战。迄今为止，大部分工作都集中在“正式”护理人员和有偿角色，以及多数族裔群体的经历上。本研究为当前的知识库贡献了独特的观点，并提出了针对支持少数族裔群体护理人员的新颖学习要点。未来的研究可以扩展本研究的结论，以具体探讨护理经历中可能存在的种族和文化细微差别。
一名非正式护理人员（大卫·布莱克）参与了研究及其材料的设计，不同少数族裔群体的护理人员也参与其中。遵循了英国国家卫生研究院关于护理人员参与研究的指南和建议。
不适用。
