Willen Sarah S, Mason Katherine A, Wurtz Heather M, Karcher Sebastian
Department of Anthropology, University of Connecticut, Storrs, Connecticut, United States of America.
Research Program on Global Health and Human Rights, Gladstein Family Human Rights Institute, University of Connecticut, Storrs, Connecticut, United States of America.
PLoS One. 2025 Sep 10;20(9):e0318397. doi: 10.1371/journal.pone.0318397. eCollection 2025.
The rapid global spread of the COVID-19 pandemic affected different regions, communities, and individuals in vastly different ways that interdisciplinary social scientists are well-positioned to document and investigate. This paper describes an innovative mixed-methods dataset generated by a research study that was designed to chronicle and preserve evidence of the pandemic's divergent effects: the Pandemic Journaling Project (PJP). The dataset was generated by leveraging digital technology to invite ordinary people around the world to document the impact of the COVID-19 pandemic on their everyday lives over a two-year period (May 2020-May 2022) using text, images, and audio.
PJP's weekly, online, bilingual (English/Spanish) journaling platform was open to anyone with access to a smartphone or computer, including teens aged 15-17 with permission of a parent or guardian. Participants first completed a baseline quantitative survey, after which they were invited to create two journal entries in response to suggested narrative prompts. In each subsequent week, participants received weekly invitations to contribute via their choice of email or SMS (text message). Each invitation included a link to that week's journaling prompts and accompanying survey questions. Participants could join the project at any point between May 2020 and May 2022. PJP employed a cohort design. Regardless of when they joined, all received the narrative prompts and accompanying survey questions in the same order. Participants could stop participating at any point, and they could later restart if they wished. The project welcomed any interested participant and sought to capture as broad a range of perspectives as possible, while also taking measures to include voices that might not otherwise be preserved in the historical record. The project launched in May 2020. In the two years it operated as a weekly journaling platform, PJP generated nearly 27,000 individual journal entries from over 1,800 people in 55 countries around the world. Data from PJP's first phase (PJP-1) are now accessible at the Qualitative Data Repository (QDR) at Syracuse University.
The first phase of the Pandemic Journaling Project has produced an innovative multimedia dataset that can support studies of how the COVID-19 pandemic has affected a wide range of communities across a wide range of outcomes including mental health, reproductive health, vaccine hesitancy, and trust in health professionals, among others. The dataset is available to researchers who follow established data protection protocols and procedures. These data protection measures will be in place for 25 years, through 2049, after which all PJP-1 data will become a fully accessible public archive via QDR.
新冠疫情在全球迅速蔓延，对不同地区、社区和个人产生了截然不同的影响，跨学科社会科学家有能力对这些影响进行记录和调查。本文介绍了一项研究生成的创新型混合方法数据集，该研究旨在记录和保存疫情不同影响的证据：大流行日记项目（PJP）。该数据集是通过利用数字技术生成的，邀请世界各地的普通人在两年时间（2020年5月至2022年5月）内，使用文本、图像和音频记录新冠疫情对他们日常生活的影响。
PJP的每周在线双语（英语/西班牙语）日记平台向任何能够访问智能手机或计算机的人开放，包括经父母或监护人许可的15至17岁青少年。参与者首先完成一份基线定量调查，之后他们被邀请根据建议的叙述提示创建两篇日记条目。在随后的每周，参与者会收到通过电子邮件或短信（文本消息）进行投稿的邀请。每次邀请都包含指向当周日记提示和相关调查问题的链接。参与者可以在2020年5月至2022年5月之间的任何时间加入该项目。PJP采用队列设计。无论何时加入，所有人都按相同顺序收到叙述提示和相关调查问题。参与者可以在任何时候停止参与，如果愿意，他们可以稍后重新开始。该项目欢迎任何感兴趣的参与者，并试图收集尽可能广泛的观点，同时还采取措施纳入那些可能不会被历史记录保存下来的声音。该项目于2020年5月启动。在作为每周日记平台运行的两年时间里，PJP从全球55个国家的1800多人那里收集了近27000篇个人日记条目。PJP第一阶段（PJP - 1）的数据现在可在锡拉丘兹大学的定性数据存储库（QDR）中获取。
大流行日记项目的第一阶段产生了一个创新的多媒体数据集，可支持对新冠疫情如何影响广泛社区的各种结果的研究，这些结果包括心理健康、生殖健康、疫苗犹豫以及对医疗专业人员的信任等。该数据集可供遵循既定数据保护协议和程序的研究人员使用。这些数据保护措施将持续25年，直至2049年，之后所有PJP - 1数据将通过QDR成为完全可访问的公共档案。
