Vullings Isabelle, El Jaouhari Soukaina, Wammes Joost, Smits Carolien, Labrie Nanon, Aydin-Misirci Beyza, Uysal-Bozkir Özgül, de Bekker-Grob Esther, MacNeil Vroomen Janet L
Department of Internal Medicine, Section of Geriatric Medicine, Amsterdam UMC, Academic Medical Center, University of Amsterdam, Meibergdreef 9, 1105 AZ Amsterdam, The Netherlands.
Amsterdam Public Health research institute, Aging & Later Life, Meibergdreef 9, 1105 AZ Amsterdam, The Netherlands.
Ageing Soc. 2025 Jul 30:1-20. doi: 10.1017/S0144686X25100111.
Ageing-in-place for persons with dementia and informal caregivers is encouraged by governments and society. However, individuals with non-Western migration backgrounds are at higher risk of dementia yet underrepresented in research and care. This study aims to identify ageing-in-place care preferences of persons with dementia and their informal caregivers in the Netherlands. Semi-structured interviews (n=8 participants with dementia, n=20 informal caregivers) were analyzed using reflexive thematic analysis. Findings reveal that informal caregivers feel a strong duty to care, assisting with various daily tasks. While they desire shared care with professionals, identifying concrete care needs is challenging, highlighting the need for proactive professional support. Participants also emphasized the importance of culturally sensitive in-home care, home adaptations, social care, and accessible dementia information. Additionally, the emotional impact of dementia on care recipients and caregivers underscores the need for emotional support. These insights enhance understanding of the care preferences of persons with dementia and their informal caregivers, aiding more efficient and culturally responsive health service planning.
政府和社会鼓励痴呆症患者及非正式照料者原地养老。然而，具有非西方移民背景的个人患痴呆症的风险更高，但在研究和护理中的代表性不足。本研究旨在确定荷兰痴呆症患者及其非正式照料者对原地养老护理的偏好。使用反思性主题分析法对半结构化访谈（n = 8名痴呆症患者参与者，n = 20名非正式照料者）进行了分析。研究结果表明，非正式照料者深感有照料的责任，协助处理各种日常任务。虽然他们希望与专业人员共同提供护理，但确定具体的护理需求具有挑战性，这凸显了积极主动的专业支持的必要性。参与者还强调了文化敏感的居家护理、家庭改造、社会护理以及可获取的痴呆症信息的重要性。此外，痴呆症对受照料者和照料者的情感影响凸显了情感支持的必要性。这些见解增进了对痴呆症患者及其非正式照料者护理偏好的理解，有助于制定更高效且具有文化适应性的医疗服务计划。
