Ageing-in-place care preferences of persons living with dementia and informal caregivers with a migration background: A qualitative interview study.

Ageing-in-place for persons with dementia and informal caregivers is encouraged by governments and society. However, individuals with non-Western migration backgrounds are at higher risk of dementia yet underrepresented in research and care. This study aims to identify ageing-in-place care preferences of persons with dementia and their informal caregivers in the Netherlands. Semi-structured interviews (n=8 participants with dementia, n=20 informal caregivers) were analyzed using reflexive thematic analysis. Findings reveal that informal caregivers feel a strong duty to care, assisting with various daily tasks. While they desire shared care with professionals, identifying concrete care needs is challenging, highlighting the need for proactive professional support. Participants also emphasized the importance of culturally sensitive in-home care, home adaptations, social care, and accessible dementia information. Additionally, the emotional impact of dementia on care recipients and caregivers underscores the need for emotional support. These insights enhance understanding of the care preferences of persons with dementia and their informal caregivers, aiding more efficient and culturally responsive health service planning.