Marten Carly, Bampton Emily, Björling Elin A, Burn Anne-Marie, Carey Emma, Fernandes Blossom, Kalha Jasmine, Lindani Simthembile, Masomera Hedwick, Neelakantan Lakshmi, Ranganathan Swetha, Shah Himani, Sibisi Refiloe, Sieberts Solveig K, Sumant Sushmita, Suver Christine, Thungana Yanga, Velloza Jennifer, Mensa-Kwao Augustina, Collins Pamela Y, Fazel Mina, Ford Tamsin, Freeman Melvyn, Pathare Soumitra, Zingela Zukiswa, Doerr Megan
Sage Bionetworks, 2901 Third Ave, Suite 330, Seattle, WA, 98121, United States, 1 2163744633.
Department of Psychiatry, University of Oxford, Oxfordshire, United Kingdom.
J Particip Med. 2025 Sep 12;17:e59697. doi: 10.2196/59697.
Public deliberation is a qualitative research method that has successfully been used to solicit laypeople's perspectives on health ethics topics, but it remains unclear whether this traditionally in-person method can be translated to the online context. The MindKind Study conducted public deliberation sessions to gauge the concerns and aspirations of young people in India, South Africa, and the United Kingdom with regard to a prospective mental health databank. This paper details our adaptations to and evaluation of the public deliberation method in an online context, especially in the presence of a digital divide.
The purpose of this study was to assess the quality of online public deliberation and share emerging learnings in a remote, disseminated qualitative research context.
We convened 2-hour structured deliberation sessions over an online video conferencing platform (Zoom). We provided participants with multimedia informational materials describing different ways to manage mental health data. We analyzed the quality of online public deliberation in variable resource settings on the basis of (1) equal participation, (2) respect for the opinions of others, (3) adoption of a societal perspective, and (4) reasoned justification of ideas. To assess the depth of comprehension of the informational materials, we used qualitative data that pertained directly to the materials provided.
The sessions were broadly of high quality. Some sessions were affected by an unstable internet connection and subsequent multimodal participation, complicating our ability to perform a quality assessment. English-speaking participants displayed a deep understanding of complex informational materials. We found that participants were particularly sensitive to linguistic and semiotic choices in the informational materials. A more fundamental barrier to understanding was encountered by participants who used materials translated from English.
Although online public deliberation may have quality outcomes similar to those of in-person public deliberation, researchers who use remote methods should plan for technological and linguistic barriers when working with a multinational population. Our recommendations to researchers include budgetary planning, logistical considerations, and ensuring participants' psychological safety.
公众审议是一种定性研究方法,已成功用于征求外行对健康伦理话题的看法,但这种传统的面对面方法能否转化为在线环境仍不清楚。MindKind研究举办了公众审议会议,以了解印度、南非和英国年轻人对未来心理健康数据库的担忧和期望。本文详细介绍了我们在在线环境中对公众审议方法的调整和评估,特别是在存在数字鸿沟的情况下。
本研究的目的是评估在线公众审议的质量,并在远程、分散的定性研究背景下分享新的经验教训。
我们通过在线视频会议平台(Zoom)召开了为期2小时的结构化审议会议。我们向参与者提供了描述管理心理健康数据不同方法的多媒体信息材料。我们根据以下方面分析了不同资源环境下在线公众审议的质量:(1)平等参与;(2)尊重他人意见;(3)采用社会视角;(4)对观点进行合理论证。为了评估对信息材料的理解深度,我们使用了与所提供材料直接相关的定性数据。
这些会议总体质量较高。一些会议受到不稳定的互联网连接和随后的多模式参与的影响,使我们进行质量评估的能力变得复杂。说英语的参与者对复杂的信息材料表现出深刻的理解。我们发现参与者对信息材料中的语言和符号选择特别敏感。使用从英语翻译过来的材料的参与者遇到了更根本的理解障碍。
尽管在线公众审议可能产生与面对面公众审议类似的质量结果,但使用远程方法的研究人员在与跨国人群合作时应考虑技术和语言障碍。我们给研究人员的建议包括预算规划、后勤考虑以及确保参与者的心理安全。