Badji Samia, Petrie Dennis, Harris Anthony, Chen Gang
Centre for Health Economics, Monash University, 900 Dandenong Road, Caulfield East, VIC, 3145, Australia.
Melbourne School of Population and Global Health, University of Melbourne, 207 Bouverie St, Carlton, VIC, 3053, Australia.
Qual Life Res. 2025 Sep 13. doi: 10.1007/s11136-025-04067-x.
This study investigates the relative importance for people with disability of key life domains and whether this differs between young people (15-24) and adults (25 and over).
A cross-sectional survey was conducted from 20 October to 31 December 2022 with National Disability Insurance Scheme (NDIS) participants asked to rank eight domains: Choice & control, Daily living, Relationships, Home, Health & wellbeing, Lifelong learning, Work, Social, Community and Civic participation. Based on a random utility framework, the data were analysed based on a ranked-ordered logit model to estimate preference shares for the order of preferences across domains. Analyses were conducted separately for the young and adult cohorts. Sensitivity analyses were conducted by relaxing the equal importance of NDIS domains in the ranking exercise based on related life domain importance rating information, which was also collected in the survey.
Our sample consisted of 1140 NDIS participants. While the majority ranked the domains as equally important, answers from the rating module suggested otherwise. Adjustments for these differences lead to similar results with both age cohorts ranking Health & Wellbeing, Home and Daily living as the most important domains. These were followed by Relationships, Choice & control, Social, Community & Civic participation, Lifelong learning, and Work for younger people. For older people the importance order between the Choice & control and Relationships was switched.
Our results revealed similarity between what younger and older people perceive as important and despite often receiving a fair share of policy attention, work was seen, on average, as the least important life domain.
本研究调查了关键生活领域对残疾人的相对重要性，以及这在年轻人（15 - 24岁）和成年人（25岁及以上）之间是否存在差异。
于2022年10月20日至12月31日进行了一项横断面调查，要求国家残疾保险计划（NDIS）的参与者对八个领域进行排序：选择与控制、日常生活、人际关系、家庭、健康与幸福、终身学习、工作、社会、社区和公民参与。基于随机效用框架，根据排序逻辑模型对数据进行分析，以估计各领域偏好顺序的偏好份额。分别对年轻和成年队列进行了分析。根据调查中收集的相关生活领域重要性评级信息，通过放宽NDIS领域在排序练习中的同等重要性进行了敏感性分析。
我们的样本包括1140名NDIS参与者。虽然大多数人将这些领域视为同等重要，但评级模块的答案却并非如此。对这些差异进行调整后，两个年龄队列的结果相似，均将健康与幸福、家庭和日常生活列为最重要的领域。其次是人际关系、选择与控制、社会、社区和公民参与、终身学习，年轻人将工作排在最后。对于老年人来说，选择与控制和人际关系的重要性顺序则相反。
我们的结果显示，年轻人和老年人认为重要的方面具有相似性，尽管工作通常得到了相当多的政策关注，但平均而言，工作被视为最不重要的生活领域。
