一种脆性X综合征的家长反应筛查量表：国际样本的开发与测试
A Parent-Response Screening Inventory for Fragile X Syndrome: Development & Testing with an International Sample.
作者信息
Johnson Vanessa A, Powell-Young Yolanda M, Brossman Bradley, Kim Elecia, Sherman Stephanie L
机构信息
Florida AtLantic University's Christine E. Lynn College of Nursing.
Dillard University School of Nursing and Center for Minority Health and Health Disparities in New Orleans; she also holds appointment as Adjunct faculty at the University of Iowa College of Nursing.
出版信息
J Theory Constr Test. 2013 Fall-Winter;17(2):38-44.
Fragile X syndrome, caused by a mutation in the FMR1 gene, is the most commonly inherited form of intellectual disability in children. Because the physical and early behavioral signs of Fragile X are often subtle, parents are often in the best position to advance early recognition and treatment. The Biopsychosocial Screening Inventory for Fragile X (BIPSSI-FX) was designed as an early detection parent-response inventory. A mixed-methods exploratory study of 886 caregivers, recruited from 22 countries across 5 continents, of children aged 1 through 18 years was used to refine a reliable and valid instrument.
脆性X综合征由FMR1基因突变引起，是儿童中最常见的遗传性智力障碍形式。由于脆性X的身体和早期行为迹象通常很细微，父母往往最有条件促进早期识别和治疗。脆性X生物心理社会筛查量表（BIPSSI-FX）被设计为一种早期检测的家长反应量表。一项对来自五大洲22个国家的886名1至18岁儿童的照顾者进行的混合方法探索性研究，用于完善一种可靠且有效的工具。
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