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在社会和葬礼限制的背景下经历亲人离世意味着什么?疫情给丧亲之痛研究和临床实践带来的启示。

What does it mean to have experienced the death of a relative in a context of social and funeral restrictions? Lessons from the pandemic for bereavement research and clinical practice.

作者信息

Boever Camille, Zech Emmanuelle, Arcand Laurence, Verdon Chantal

机构信息

Psychological Sciences Research Institute of the Université catholique de Louvain (UCLouvain), Louvain-la-Neuve, Belgium.

Fund for Scientific Research (FRS-FNRS), Brussels, Belgium.

出版信息

PLoS One. 2025 Sep 19;20(9):e0331946. doi: 10.1371/journal.pone.0331946. eCollection 2025.

Abstract

The circumstances of the Covid-19 pandemic raised concerns about their impact on people who were bereaved in this period. Numerous studies have attempted to quantify this impact. However, they have often adopted a pathologizing perspective on grief, with little attention being paid to the mediating processes and to the diversity of experiences, and their results have appeared contradictory. This study takes a comprehensive approach to understand these experiences in their uniqueness, without pathologizing them. Interviews with 12 bereaved people were analyzed using an interpretative phenomenological analysis and drawing on the theoretical framework of meaning-making, to explore the meanings that they gave to their loss and grief in a context of social and funeral restrictions. In our findings, the context of the pandemic appeared to be completely incompatible with the field of dying and mourning, creating paradoxical injunctions for some participants. While this led to feelings of guilt, powerlessness and loss of meaning for some, others were able to experience meaningful moments and to find solace in the farewell. All experiences were far from what had been expected, for better or for worse, and participants had to find their own ways to make sense of these unexpected experiences. The meanings they gave were complex, combining different levels of meaning - personal, moral, societal, or existential - and evolved over time, as did their emotional experiences. The results highlight the notions of paradoxical injunctions and grieving for an ideal goodbye as relevant for understanding and supporting the bereaved, drawing avenues for therapeutic work (e.g., restoring agency by providing a secure space to create a meaningful rite). They also have implications for research, highlighting the need to broaden the understanding of "impact", to include mediators assessing subjectivity, and to privilege person-centered qualitative and quantitative methods.

摘要

新冠疫情的形势引发了人们对其在此期间对丧亲者影响的担忧。众多研究试图量化这种影响。然而,这些研究往往对悲伤采取了一种病态化的视角,很少关注中介过程以及经历的多样性,其结果也显得相互矛盾。本研究采用一种全面的方法来理解这些独特的经历,而不对其进行病态化处理。通过对12名丧亲者进行访谈,并运用解释现象学分析,借鉴意义建构的理论框架,以探究他们在社会和葬礼限制背景下赋予失去和悲伤的意义。在我们的研究结果中,疫情背景似乎与死亡和哀悼领域完全不兼容,给一些参与者带来了自相矛盾的指令。虽然这给一些人带来了内疚、无力和意义丧失的感觉,但另一些人能够体验到有意义的时刻,并在告别中找到慰藉。所有的经历无论好坏都与预期大相径庭,参与者必须找到自己的方式来理解这些意外经历。他们赋予的意义很复杂,融合了不同层面的意义——个人、道德、社会或存在层面的——并且随着时间的推移以及他们的情感体验而演变。研究结果凸显了自相矛盾的指令以及为理想告别而悲伤的概念对于理解和支持丧亲者的相关性,为治疗工作开辟了途径(例如,通过提供一个安全的空间来创造有意义的仪式以恢复能动性)。它们对研究也有启示,强调需要拓宽对“影响”的理解,纳入评估主观性的中介因素,并优先采用以人为主的定性和定量方法。

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