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《解围之神:呼吸护理中技术、死亡与决策的民族志探索》

Deus Ex Machina: An Ethnographic Exploration of Technology, Death and Decision-Making in Respiratory Care.

作者信息

Wenzel David, Creese Jennifer, Wilson Eleanor, Jones Michael, Faull Christina

机构信息

Department of Population Health Sciences, University of Leicester, Leicester, UK.

School of Health Sciences, University of Nottingham, Nottingham, UK.

出版信息

Sociol Health Illn. 2025 Nov;47(8):e70091. doi: 10.1111/1467-9566.70091.

Abstract

Noninvasive advanced respiratory support (NARS) is widely used in acute respiratory failure, including at the end of life, where its use is ethically and emotionally fraught. This ethnographic study examines how decisions to initiate, sustain or withdraw NARS are negotiated within the institutional and moral complexities of a UK hospital. Drawing on fieldwork including nonparticipant observation, reflective fieldnotes and composite narratives, this paper explores how dying is not simply recognised but discursively produced through clinical interactions. Guided by Foucault's concept of power/knowledge and Orlikowski's theory of technology-in-practice, this study shows how authority circulates unevenly across professional boundaries and how machines become nonhuman actors that structure time, command clinical attention and produce epistemically privileged outputs. These outputs, especially blood gas samples, change the flow of power/knowledge and can override patient experience, shaping decisions around palliation. By tracing how clinical truth is co-produced through medical technology, discursive hierarchies and institutional logics, this paper intervenes in sociological debates on end-of-life care, technological agency and the moral labour of frontline staff. It argues that recognising dying is not merely a clinical judgement but an emergent, distributed achievement, one shaped as much by machines and metrics as by human actors.

摘要

无创高级呼吸支持(NARS)在急性呼吸衰竭中被广泛应用,包括在生命末期,而在这一阶段使用该技术在伦理和情感方面都充满争议。这项人种志研究考察了在英国一家医院的制度和道德复杂性背景下,启动、维持或停止使用NARS的决策是如何进行协商的。本文借鉴了包括非参与观察、反思性田野笔记和综合叙事在内的田野调查工作,探讨了死亡如何不仅是被识别出来的,而且是通过临床互动在话语层面上被建构出来的。以福柯的权力/知识概念和奥丽可丝的技术实践理论为指导,本研究展示了权威如何在专业界限之间不均衡地流动,以及机器如何成为非人类行动者,它们构建时间、掌控临床关注并产生认知上具有特权的输出。这些输出,尤其是血气样本,改变了权力/知识的流动,并且能够凌驾于患者体验之上,影响围绕缓和治疗的决策。通过追溯临床真相如何通过医疗技术、话语等级制度和机构逻辑共同产生,本文介入了关于临终关怀、技术能动性和一线工作人员道德劳动的社会学辩论。它认为,认识到死亡不仅仅是一种临床判断,而是一种涌现的、分布式的成果,它既由机器和指标塑造,也由人类行动者塑造。

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