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采用腭裂-生活质量问卷(CLEFT-Q)对不同年龄组接受腭裂修复术的腭裂患者进行护理人员报告的言语和社会功能结局:一项横断面问卷调查研究

Caregiver-reported outcomes of speech and social function among cleft palate patients operated with palatoplasty, at different age groups, using CLEFT-Q: A cross-sectional questionnaire study.

作者信息

Chandrachood Meghna, Gandevivala Adil, Nataraj Srivalli, Patkar Nitesh, Pranave P, Patel Varsha

机构信息

Department of Oral and Maxillofacial Surgery, MGM Dental College and Hospital, Navi Mumbai, Maharashtra, India.

出版信息

Natl J Maxillofac Surg. 2025 May-Aug;16(2):278-284. doi: 10.4103/njms.njms_188_24. Epub 2025 Aug 30.

Abstract

OBJECTIVE

Cleft palate significantly impacts a child's ability to speak clearly and interact socially, often affecting psychosocial development. While early palatoplasty is known to support better speech outcomes, limited data exists from the caregiver's perspective, particularly in diverse cleft severities. This study aimed to assess the influence of age at surgery and cleft severity on caregiver-reported outcomes in speech and social function using the CLEFT-Q tool.

MATERIALS AND METHODS

A retrospective cohort study was conducted at a tertiary cleft center. Caregivers of 237 children aged 3-15 years who underwent primary palatoplasty between 2019 and 2022 were interviewed using the Hindi version of the CLEFT-Q. Participants were grouped by age at surgery: Group A (before 18 months) and Group B (after 18 months), and by Veau cleft classification (I-IV). Outcomes in speech distress, speech function, and social function were compared using one-way ANOVA.

RESULTS

Group A (n=94) had higher mean scores than Group B (n=143): speech distress (83.03 vs. 75.10), speech function (82.27 vs. 75.29), and social function (80.42 vs. 75.78). Differences were statistically significant across Veau types I-III. In Veau type IV, Group A showed better speech scores, while social scores were not significantly different. Intragroup comparisons across Veau types showed no significant score variations.

CONCLUSION

Early palatoplasty before 18 months is associated with improved caregiver-reported speech and social outcomes, irrespective of cleft severity. These findings support timely surgical intervention and can guide caregiver counseling in cleft care.

摘要

目的

腭裂会严重影响儿童清晰说话和社交互动的能力,常常影响其心理社会发展。虽然早期腭裂修复术已知能带来更好的语音效果,但从照顾者角度获得的数据有限,尤其是在不同腭裂严重程度的情况下。本研究旨在使用CLEFT-Q工具评估手术年龄和腭裂严重程度对照顾者报告的语音和社会功能结果的影响。

材料与方法

在一家三级腭裂中心进行了一项回顾性队列研究。使用CLEFT-Q的印地语版本对2019年至2022年间接受一期腭裂修复术的237名3至15岁儿童的照顾者进行了访谈。参与者按手术年龄分组:A组(18个月之前)和B组(18个月之后),并按韦氏腭裂分类(I-IV级)。使用单因素方差分析比较语音困扰、语音功能和社会功能方面的结果。

结果

A组(n = 94)的平均得分高于B组(n = 143):语音困扰(83.03对75.10)、语音功能(82.27对75.29)和社会功能(80.42对75.78)。在韦氏I-III型中差异具有统计学意义。在韦氏IV型中,A组的语音得分更好,而社会得分无显著差异。各韦氏类型组内比较显示得分无显著差异。

结论

18个月前进行早期腭裂修复术与照顾者报告的更好的语音和社会结果相关,无论腭裂严重程度如何。这些发现支持及时进行手术干预,并可为腭裂护理中的照顾者咨询提供指导。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/02c5/12469169/b1a4fb0775f1/NJMS-16-278-g001.jpg

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