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青少年和青年的囊性纤维化

Cystic fibrosis in adolescents and young adults.

作者信息

Howie A D, Stack B H

出版信息

Scott Med J. 1979 Jul;24(3):193-8. doi: 10.1177/003693307902400304.

Abstract

With the early diagnosis of cystic fibrosis and the better management of these patients in childhood increasing numbers are surviving to adult life. The main problem requiring continuous medical care in the older cystic fibrosis patient is persisting and often progressive chest disease. For this reason the cystic fibrosis clinic for adolescents and young adults was started in the Western Infirmary in 1975. This paper presents our observations on 13 patients who had attended between 1975 and 1977. Eleven patients are alive and well and have shown no evidence of deterioration over this period. Ten are at school or in regular employment. With optimum medical supervision it is possible to give young adults with cystic fibrosis a worthwhile existence.

摘要

随着囊性纤维化的早期诊断以及对这些儿童患者更好的治疗管理,越来越多的患者存活至成年。年龄较大的囊性纤维化患者持续需要医疗护理的主要问题是持续且往往呈进行性发展的胸部疾病。出于这个原因,1975年在西部医院开设了青少年及青年囊性纤维化诊所。本文介绍了我们对1975年至1977年间就诊的13名患者的观察情况。11名患者存活且状况良好,在此期间没有恶化迹象。10名患者在上学或有固定工作。通过最佳的医疗监督,有可能让患有囊性纤维化的年轻人过上有价值的生活。

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