Murdoch J C
J Ment Defic Res. 1984 Jun;28 ( Pt 2):123-7. doi: 10.1111/j.1365-2788.1984.tb01003.x.
A postal questionnaire completed by the mothers of 123 children with Down's syndrome and 109 children with Spina bifida born over the past 10 years in Scotland has shown that difficulties exist in the transfer of care from hospital to the home. Few Spina bifida children came home at the same time as the mothers and only one-half of both groups were given positive encouragement concerning the homecoming. Two-thirds of the Down's mothers and less than half of the Spina bifida mothers were seen by their general practitioner on their return and a significant minority of those visited found his visit unhelpful. A greater percentage of both groups were visited by the health visitor and about a third found her visit unhelpful. It is suggested that the training of both these health professionals may not be appropriate to the correct management of these handicaps at home.
一份由123名唐氏综合征患儿和109名脊柱裂患儿的母亲填写的邮政调查问卷显示，这些患儿均在过去10年出生于苏格兰。调查结果表明，在从医院到家庭的护理交接过程中存在困难。很少有脊柱裂患儿与母亲同时出院回家，两组中只有一半的母亲得到了关于回家的积极鼓励。唐氏综合征患儿母亲中有三分之二、脊柱裂患儿母亲中不到一半在回家后去看了全科医生，而在接受家访的人中，有相当一部分人觉得医生的家访没有帮助。两组中接受健康访视员家访的比例更高，约三分之一的人觉得她的家访没有帮助。有人认为，这两位医疗专业人员所接受的培训可能并不适合在家中对这些残疾患儿进行正确护理。
