Holland M B, Gilbertson M P
Z Kinderchir. 1983 Dec;38 Suppl 2:113-5. doi: 10.1055/s-2008-1063094.
Developments in surgical treatment for spina bifida and hydrocephalus during the '60s means that there is now a large group of severely disabled young people and adults with increasing and special problems. A survey was therefore carried out by ASBAH between October 1981 and October 1982 into the provision of hospital services for young people with spina bifida and hydrocephalus when they became too old for paediatric services, and especially into the system of transfer to adult provision. 370 questionnaires were returned out of 3,000 sent out. The information acquired related to the number and variety of hospitals attended, the type of medical supervision and the problems encountered in seeking treatment and advice. The indications are that specialist treatment and understanding are not available except in very few cases. Examples of current practice in the UK and abroad are cited and some conclusions drawn as to possible solutions.
20世纪60年代脊柱裂和脑积水外科治疗的进展意味着现在有一大群严重残疾的年轻人和成年人，他们面临着越来越多的特殊问题。因此，1981年10月至1982年10月期间，英国脊柱裂和脑积水协会（ASBAH）开展了一项调查，了解脊柱裂和脑积水患者长大后不再适合儿科服务时医院为他们提供服务的情况，特别是向成人服务转移的系统。在发出的3000份问卷中，有370份被收回。收集到的信息涉及就诊医院的数量和种类、医疗监督类型以及寻求治疗和建议时遇到的问题。结果表明，除了极少数情况外，无法获得专科治疗和理解。文中列举了英国和国外目前的做法实例，并就可能的解决方案得出了一些结论。
