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身为患者的医生:与吉兰-巴雷综合征的一次遭遇

The doctor as patient: an encounter with Guillain-Bárré syndrome.

作者信息

Bowes D

出版信息

Can Med Assoc J. 1984 Dec 1;131(11):1343-8.

Abstract

The author describes the course and treatment of a severe acute illness that began with cranial nerve palsies and ataxia and progressed rapidly to generalized weakness with respiratory embarrassment. There was no sensory loss or elevation of the protein level in the cerebrospinal fluid. The Miller Fisher variant of Guillain-Barré syndrome was diagnosed. At the height of the illness, a period lasting about 2 weeks, the author was almost completely paralysed, retaining only a little motion in some fingers and one foot; she was able to breathe on her own but required suctioning through a tracheostomy, and her eyes had to be taped shut because of her facial paralysis. She remained mentally alert throughout. Proper care of such a helpless patient demands not only excellent technical performance of many nursing procedures but a sensitivity to the patient as a person. The author describes the many shortcomings of the care she received and the value of physiotherapy in her rehabilitation and makes a number of specific recommendations for the care of critically ill conscious patients.

摘要

作者描述了一种严重急性疾病的病程及治疗情况。该疾病始于颅神经麻痹和共济失调,迅速发展为全身无力并伴有呼吸窘迫。脑脊液中无感觉丧失或蛋白水平升高。诊断为吉兰 - 巴雷综合征的米勒·费希尔变异型。在疾病高峰期,持续约2周的时间里,作者几乎完全瘫痪,仅某些手指和一只脚还能有一点活动;她能够自主呼吸,但需要通过气管造口术进行吸痰,由于面部瘫痪,眼睛不得不被 taped shut(原文此处表述有误,推测可能是“taped closed”,意为“用胶布封住”)。她始终保持精神清醒。对这样无助的患者进行恰当护理不仅需要在许多护理操作上具备出色的技术水平,还需要对患者本人有同理心。作者描述了她所接受护理的诸多不足之处以及物理治疗在其康复过程中的价值,并针对重症清醒患者的护理提出了一些具体建议。

相似文献

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Sensory Guillain-Barré syndrome.感觉性吉兰-巴雷综合征
Arch Phys Med Rehabil. 1995 Sep;76(9):882-3. doi: 10.1016/s0003-9993(95)80557-5.

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