White M P, Reynolds B, Evans T J
Br Med J (Clin Res Ed). 1984 Jul 21;289(6438):167-9. doi: 10.1136/bmj.289.6438.167.
The handling of death in a special care nursery and the needs of bereaved parents were studied in 12 families. Communication was good before death but less satisfactory thereafter, particularly with regard to postmortem results and advice concerning recurrence risk. Parents needed a lasting memory of their child and attached great importance to a tangible memento. Half had an abnormally high grief and Leeds scale score six months after the death, which seemed to be associated with poor marital support. All in the high scoring group favoured bereavement counselling. Communication with general practitioners needed improvement. As a result of this study a protocol for the handling of death was designed.
对12个家庭在特别护理婴儿室中死亡的处理情况以及失去孩子的父母的需求进行了研究。死亡前沟通良好,但之后就不那么令人满意了,尤其是在尸检结果和复发风险建议方面。父母需要对孩子有持久的记忆,并非常重视一件实实在在的纪念品。半数父母在孩子死亡六个月后悲伤程度异常高,利兹量表得分也很高,这似乎与婚姻支持不足有关。所有高分组的父母都赞成进行丧亲辅导。与全科医生的沟通需要改进。基于这项研究,设计了一份死亡处理方案。