Segal S, Fletcher M, Meekison W G
CMAJ. 1986 Jan 1;134(1):38-42.
A retrospective study in Vancouver was designed to evaluate parents' perceptions of support received after the death of a child up to 5 years old. The families were contacted with the help of health care professionals and the news media. A standardized questionnaire was used in a personal interview or occasionally by mail. The contact with health care professionals after the child's death was frequently considered by the 61 families not to have been helpful: 80% of the families judged the information or counselling they had received to be inadequate, and over 50% had received none; many listed comments and behaviour that they considered harmful. The families desired both full medical information and grief support; what forms such support could take are suggested.
温哥华的一项回顾性研究旨在评估父母对于5岁及以下儿童死亡后所获支持的看法。在医疗保健专业人员和新闻媒体的帮助下,研究人员联系了这些家庭。在个人访谈中或偶尔通过邮件使用标准化问卷。61个家庭中,很多人认为孩子死后与医疗保健专业人员的接触并无帮助:80%的家庭认为他们得到的信息或咨询不足,超过50%的家庭根本没有得到任何信息或咨询;许多家庭列出了他们认为有害的评论和行为。这些家庭既想要完整的医疗信息,也想要悲伤辅导;文中还提出了这种支持可以采取的形式。