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海伦之家——一家儿童临终关怀院:首年分析

Helen House--a hospice for children: analysis of the first year.

作者信息

Burne S R, Dominica F, Baum J D

出版信息

Br Med J (Clin Res Ed). 1984 Dec 15;289(6459):1665-8. doi: 10.1136/bmj.289.6459.1665.

DOI:10.1136/bmj.289.6459.1665
PMID:6439370
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1443799/
Abstract

Helen House, a hospice for children, opened in Oxford in November 1982. From then until December 1983 care was provided for 52 children with terminal illness, progressive and incurable illness, and very severe handicap. The children came from a wide area of the United Kingdom, and eight died during the year. The style of care provided in Helen House is based on that of the families in their own homes, with a minimum of rules, regulations, and routines. Terminal care follows the principles developed by hospices experienced in the care of adults. Despite the great sadness and distress associated with every child admitted, Helen House is neither a sombre nor a depressing place.

摘要

海伦之家是一家儿童临终关怀医院,于1982年11月在牛津开业。从那时起到1983年12月,共为52名患有绝症、进行性和不治之症以及严重残疾的儿童提供了护理。这些儿童来自英国各地,当年有8名儿童去世。海伦之家提供的护理方式以家庭护理为基础,尽量减少规章制度和日常程序。临终关怀遵循在成人护理方面经验丰富的临终关怀医院所制定的原则。尽管每一个入院的孩子都伴随着巨大的悲伤和痛苦,但海伦之家既不阴森也不压抑。

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The dying child at home.在家中濒临死亡的孩子。
J R Coll Gen Pract. 1987 Jul;37(300):291.
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Palliative care for children with cancer--home, hospital, or hospice?癌症患儿的姑息治疗——在家中、医院还是临终关怀机构?
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本文引用的文献

1
Hospice care for children.儿童临终关怀护理。
Br Med J (Clin Res Ed). 1982 May 8;284(6326):1400. doi: 10.1136/bmj.284.6326.1400.
2
A hospice for children in England.英国的一家儿童临终关怀医院。
Pediatrics. 1984 Jan;73(1):97-8.
3
Problems of hospices.临终关怀机构的问题。
Br Med J (Clin Res Ed). 1984 Apr 21;288(6425):1178-9. doi: 10.1136/bmj.288.6425.1178.
4
Helping a child to live whilst dying.
Lancet. 1980 Apr 5;1(8171):753-6. doi: 10.1016/s0140-6736(80)91246-5.