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医生早期的家长咨询对唐氏综合征患儿养育的影响。

Effects of physicians' early parental counseling on rearing of Down syndrome children.

作者信息

Springer A, Steele M W

出版信息

Am J Ment Defic. 1980 Jul;85(1):1-5.

PMID:6449867
Abstract

A survey of the feelings of 37 couples with a school-age Down syndrome child born since 1970 suggested a diminished influence of physicians' early counseling on parental decisions, attitudes, and rearing practices respecting their affected child. In contrast, undefined "personal feelings," own research, and input from community parent groups (such as the Pennsylvania Association for Retarded Citizens) were major influences. Parental decisions on further reproduction after the birth of a Down syndrome child was based less on perception of genetic risks than on concern for the care needs of their affected child.

摘要

一项针对1970年以来出生的37对育有学龄唐氏综合征患儿的夫妇的情感调查显示,医生早期咨询对父母关于其患病子女的决策、态度及养育方式的影响有所减弱。相比之下,不明晰的“个人情感”、自身研究以及社区家长团体(如宾夕法尼亚智障公民协会)的意见则是主要影响因素。唐氏综合征患儿出生后,父母关于再次生育的决策较少基于对遗传风险的认知,而是更多地基于对患病子女护理需求的担忧。

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引用本文的文献

1
Effects of a genetic counseling model on mothers of children with down syndrome: a Brazilian pilot study.遗传咨询模式对唐氏综合征患儿母亲的影响:一项巴西的试点研究。
J Genet Couns. 2013 Dec;22(6):784-94. doi: 10.1007/s10897-013-9619-x. Epub 2013 Jun 23.
2
Adoption and fostering of babies with Down syndrome: a cohort of 593 cases.唐氏综合征患儿的收养与寄养:593例队列研究
Prenat Diagn. 1998 May;18(5):437-45.