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父母对为患有脑瘫的幼儿家庭提供的医疗和社会工作服务的看法。

Parents' views of medical and social-work services for families with young cerebral-palsied children.

作者信息

Tarran E C

出版信息

Dev Med Child Neurol. 1981 Apr;23(2):173-82. doi: 10.1111/j.1469-8749.1981.tb02439.x.

DOI:10.1111/j.1469-8749.1981.tb02439.x
PMID:6452303
Abstract

A specialist social worker interviewed the parents of 67 cerebral-palsied children aged between three and 10 years who were attending or had recently attended for treatment at centres in Dundee and Glasgow. Data were collected on how the presence of a handicapped child affected family life, and on the parents' perceptions of the services they had received and found helpful. Although half the mothers initially were unhappy about their child being away from home for part of the day at a pre-school day placement, the majority soon found that the child's absence (especially in cases when he was receiving active therapy) made it easier to cope when he was home. Nearly half of the parents questioned were dissatisfied about the way they were first told of their child's handicap, and a majority felt they had not received enough help at this time. The requirements for a flexible and comprehensive service to meet the needs of such families are outlined.

摘要

一名专业社会工作者采访了67名年龄在3至10岁之间的脑瘫儿童的家长,这些儿童正在或最近在邓迪和格拉斯哥的治疗中心接受治疗。收集了关于残疾儿童的存在如何影响家庭生活的数据,以及家长对他们所接受并认为有帮助的服务的看法。虽然最初有一半的母亲对孩子在学前日间安置机构每天有一段时间离家表示不满,但大多数母亲很快发现孩子不在家(尤其是在接受积极治疗的情况下)让她们在孩子回家时更容易应对。近一半接受询问的家长对最初被告知孩子残疾的方式不满意,而且大多数家长觉得当时没有得到足够的帮助。文中概述了为满足这类家庭的需求而提供灵活全面服务的要求。

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Dev Med Child Neurol. 1981 Apr;23(2):173-82. doi: 10.1111/j.1469-8749.1981.tb02439.x.
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