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心血管或脑血管疾病患者应对疾病的过程:一项新的调查:EKV。

The coping process with illness in patients with cardiovascular or cerebrovascular diseases: a new survey: EKV.

作者信息

Egger J, Stix P

出版信息

Int J Rehabil Res. 1984;7(2):135-42. doi: 10.1097/00004356-198406000-00001.

DOI:10.1097/00004356-198406000-00001
PMID:6490269
Abstract

The EKV is a survey constructed by the authors to get detailed information about the patient's feelings, thoughts, attitudes, and plans when confronted with a severe organic (chronic) disease, especially with cardiovascular or cerebrovascular diseases. Starting from the actual situation the focus lies on the patient's realization of consequences resulting from the illness-event for the organic, emotional-cognitive, familial, occupational and social aspects of life. Further topics are early and previous events or thoughts and the development of symptoms associated with the later outbreak of functional disorders or organic lesions which are treated now. Attention is also paid for the treatment situation in the past and at time and for the patient's projections to future life: thoughts about the progress of his disease, expected physical and psychical potency, occupational and leisure plans, partnership, familial and social life, illness-related changes in the style of life, expected satisfaction with life etc. The survey is to be used as a half-structured interview that takes 2 to 3 hours. It has already been tested, modified and now used on ca. 150 patients with different vascular diseases (pts. with myocardial infarction, coronary heart disease (angina pectoris), functional heart and circulatory disorders; completed stroke, prolonged ischaemic neurological defect, or transitoric investigation with the EKV are in preparation. Within a psychosomatic framework the survey gives a relevant overview and useful insight in the patient's reality, his adapting and coping reactions, the meaning of the chronic disease for his self-conception and way of life, as well as possibilities or necessities for psychological interventions and other treatment aspects.

摘要

EKV是作者构建的一项调查问卷,旨在获取患者在面对严重器质性(慢性)疾病,尤其是心血管或脑血管疾病时的感受、想法、态度和计划的详细信息。从实际情况出发,重点在于患者对疾病事件给生活的机体、情感认知、家庭、职业和社会方面所带来后果的认识。其他主题包括早期和既往事件或想法,以及与目前正在治疗的功能障碍或器质性病变的后期发作相关的症状发展。同时也关注过去和当前的治疗情况,以及患者对未来生活的预测:关于疾病进展的想法、预期的身体和心理能力、职业和休闲计划、伴侣关系、家庭和社会生活、与疾病相关的生活方式变化、预期的生活满意度等。该调查问卷用作半结构化访谈,耗时2至3小时。它已经过测试、修改,目前已应用于约150名患有不同血管疾病的患者(心肌梗死、冠心病(心绞痛)、功能性心脏和循环系统疾病患者;已完成中风、长期缺血性神经缺陷患者,或正在准备对EKV进行短暂性调查)。在身心框架内,该调查问卷对患者的实际情况、适应和应对反应、慢性病对其自我概念和生活方式的意义,以及心理干预和其他治疗方面的可能性或必要性给出了相关概述和有用见解。

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