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与截肢相伴:这对患者及其照料者意味着什么。

Living with an amputation: what it means for patients and their helpers.

作者信息

Thompson D M, Haran D

出版信息

Int J Rehabil Res. 1984;7(3):283-92.

PMID:6511159
Abstract

The social and emotional problems declared by 134 single-leg amputees are compared with those of 109 people who were their main helpers. The Day Amputee Activity Score, the Goldberg GHQ, Townsend's Social Isolation scale and Forder's concept of Felt Need were used in the study. The majority of patients were elderly males. Most of the carers were women. Peripheral vascular disease was the most frequent reason for the amputation and its persistence postoperatively was predictive of poor rehabilitation outcome. The respondents reported unmet need for information about financial help, employment and social activity. Both groups shared a high level of social isolation, which was associated with risk of psychiatric illness and appeared to inhibit the expression of need. Helpers complained more forcefully than patients about service provision and discussed their emotional reactions more readily. The amputees tended to use denial in confronting the implications of limb ablation. Many respondents had no sources of help with personal or practical problems. Their knowledge of available services was poor. In particular, the role of social workers was not well understood. Neither the social work profession nor the Artificial Limb Centre was used to any appreciable extent as a source of help with psychosocial adjustment to loss of a limb.

摘要

对134名单腿截肢者所宣称的社会和情感问题与109名他们的主要帮助者的问题进行了比较。本研究使用了日间截肢者活动评分、戈德堡一般健康问卷、汤森社会隔离量表以及福特的感知需求概念。大多数患者为老年男性。大多数照料者为女性。外周血管疾病是截肢最常见的原因,且术后持续存在该疾病预示着康复效果不佳。受访者表示对经济援助、就业和社会活动方面信息的需求未得到满足。两组都存在高度的社会隔离,这与精神疾病风险相关,且似乎抑制了需求的表达。与患者相比,帮助者对服务提供的抱怨更强烈,也更愿意讨论他们的情绪反应。截肢者在面对肢体切除的影响时倾向于否认。许多受访者在个人或实际问题上没有帮助来源。他们对现有服务的了解很差。特别是,社会工作者的角色没有得到很好的理解。社会工作专业和假肢中心在帮助心理社会适应肢体缺失方面都没有得到显著利用。

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