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Costs and utilization of treatment in patients with hemophilia.血友病患者的治疗成本与利用情况
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First analysis of 10-year trends in national factor concentrates usage in haemophilia: data from CHARMS, the Canadian Hemophilia Assessment and Resource Management System.血友病国家凝血因子浓缩物使用情况10年趋势的首次分析:来自加拿大血友病评估与资源管理系统(CHAMRS)的数据
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本文引用的文献

1
Socioeconomic evaluation of a state-funded comprehensive hemophilia-care program.一项由国家资助的综合性血友病护理项目的社会经济评估。
N Engl J Med. 1982 Mar 11;306(10):575-9. doi: 10.1056/NEJM198203113061004.
2
Supervised patient-management of hemophilia. A study of 45 patients with hemophilia A and B.
Ann Intern Med. 1973 Feb;78(2):195-201. doi: 10.7326/0003-4819-78-2-195.
3
The social and economic impact of hemophilia--a survey of 70 cases in Vermont and New Hampshire.血友病的社会和经济影响——佛蒙特州和新罕布什尔州70例病例的调查
Am J Public Health. 1972 Apr;62(4):530-5. doi: 10.2105/ajph.62.4.530.
4
Delivery of health care in hemophilia.
Ann N Y Acad Sci. 1975 Jan 20;240:201-7. doi: 10.1111/j.1749-6632.1975.tb53346.x.

血友病综合护理的益处:一项为期五年的结局研究。

The benefits of comprehensive care of hemophilia: a five-year study of outcomes.

作者信息

Smith P S, Levine P H

出版信息

Am J Public Health. 1984 Jun;74(6):616-7. doi: 10.2105/ajph.74.6.616.

DOI:10.2105/ajph.74.6.616
PMID:6721023
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1651643/
Abstract

Eleven of 22 federally funded Comprehensive Hemophilia Centers have collected data on outcomes, before and after five years of this program's existence. Improved health, decreased hospitalization, decreased absenteeism, and a decrease in the unemployment rate from 36 per cent to 13 per cent were accompanied by decreased costs of care. In this model of a chronic handicapping illness, the early application of comprehensive care is preferable to the previous emphasis on end-stage rehabilitative efforts.

摘要

在该项目实施五年前后,22家由联邦政府资助的综合血友病治疗中心中的11家收集了相关结果数据。健康状况改善、住院次数减少、缺勤率降低,失业率从36%降至13%,同时护理成本也有所下降。在这种慢性致残疾病的模式中,早期应用综合护理比以往强调的终末期康复努力更为可取。